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#RaisetheRealm 5 Days Left to $70K

  • March 6, 2019

#RaisetheRealm 5 Days Left to $70K

[youtube https://www.youtube.com/watch?v=4WqnfySaVCg]


The Brown family are natives of Colorado and Tyler has suffered from debilitating seizures since the age of 7 from a rare form of intractable epilepsy know as Lennox Gastaut Syndrome, and he also has cerebral palsy. Tyler has been through more than most of us. He had a VNS (vagus nerve stimulator) implanted age at 9, emergency Corpus Callosotomy (for those of you who don’t know what that means the surgeon cuts the corpus callosum, which is the large fiber bundle that connects the two sides of the brain) to stop status seizures at age 10.  Tyler also had a G-tube placed at age 10 because eating/chewing would trigger seizures and aspiration.

Tyler’s family tried 12 different pharmaceutical medications to control his seizures. Every single one failed. After the Corpus Callosotomy, two medically-induced comas, and unresponsiveness to rescue medications, there were no other options. This is when Tyler’s mom learned about medical cannabis.

She says it was their “only hope”.  Since using cannabis, Tyler reduced the number of pharmaceutical medications, and he is much healthier overall. No more frequent pneumonia and other illnesses landing him in the hospital. Until recently, the cannabis therapies have kept Tyler’s seizures at baseline.

Now that Tyler is 16, he is dealing with puberty, which means an increase in hormones. This has caused an increase in seizures that not even cannabis can control. Tyler’s parents have tried CBD alone, THC alone, and a combination of both. THC was very useful for Tyler’s withdrawal symptoms when weaning his pharmaceuticals.

Tyler’s mom, Rita, would like to add “a huge thanks to Realm of Caring, the Stanley Brothers, Heather and Paige for all the support and knowledge while going through this process. We couldn’t have done it without them!”

#RaisetheRealm #SiblingLove


TYLER2
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