Skip to the content
  • 719-347-5400
  • [email protected]
Get Started for Free!
Log In
  • Research
    • Research Library
    • Participate
      • Long-Term CBD Study
      • National Cannabis Study
      • Observational Research Registry
      • Women’s Veteran Study
  • Resources
    • Client Portal
      • Dosing & Administration
      • Client Education Series
      • Client F.A.Q.
        • Client Additional Questions
      • For Pets
      • Glossary
      • Locate a Healthcare Professional
      • Medical Cannabis Cards
      • Printable Resources
    • Healthcare Portal
      • Dosing & Administration
      • Join Our List of Healthcare Professionals
      • Practitioner Education
    • Events
      • Book Club
      • Virtual Support Groups
    • Partner Marketplace
    • Merch Shop
  • Blog
    • Education
    • Client Stories
  • About
    • Donate
    • Who We Are
    • In the News
    • Our Supporters
    • Financials
  • Contact Us
    • Call or Email
    • Request an Appointment
    • Volunteer
  • Research
    • Research Library
    • Participate
      • Long-Term CBD Study
      • National Cannabis Study
      • Observational Research Registry
      • Women’s Veteran Study
  • Resources
    • Client Portal
      • Dosing & Administration
      • Client Education Series
      • Client F.A.Q.
        • Client Additional Questions
      • For Pets
      • Glossary
      • Locate a Healthcare Professional
      • Medical Cannabis Cards
      • Printable Resources
    • Healthcare Portal
      • Dosing & Administration
      • Join Our List of Healthcare Professionals
      • Practitioner Education
    • Events
      • Book Club
      • Virtual Support Groups
    • Partner Marketplace
    • Merch Shop
  • Blog
    • Education
    • Client Stories
  • About
    • Donate
    • Who We Are
    • In the News
    • Our Supporters
    • Financials
  • Contact Us
    • Call or Email
    • Request an Appointment
    • Volunteer
Log In
Donate
Log In
Donate
  • Research
    • Research Library
    • Participate
      • Long-Term CBD Study
      • National Cannabis Study
      • Observational Research Registry
      • Women’s Veteran Study
  • Resources
    • Client Portal
      • Dosing & Administration
      • Client Education Series
      • Client F.A.Q.
        • Client Additional Questions
      • For Pets
      • Glossary
      • Locate a Healthcare Professional
      • Medical Cannabis Cards
      • Printable Resources
    • Healthcare Portal
      • Dosing & Administration
      • Join Our List of Healthcare Professionals
      • Practitioner Education
    • Events
      • Book Club
      • Virtual Support Groups
    • Partner Marketplace
    • Merch Shop
  • Blog
    • Education
    • Client Stories
  • About
    • Donate
    • Who We Are
    • In the News
    • Our Supporters
    • Financials
  • Contact Us
    • Call or Email
    • Request an Appointment
    • Volunteer
  • Research
    • Research Library
    • Participate
      • Long-Term CBD Study
      • National Cannabis Study
      • Observational Research Registry
      • Women’s Veteran Study
  • Resources
    • Client Portal
      • Dosing & Administration
      • Client Education Series
      • Client F.A.Q.
        • Client Additional Questions
      • For Pets
      • Glossary
      • Locate a Healthcare Professional
      • Medical Cannabis Cards
      • Printable Resources
    • Healthcare Portal
      • Dosing & Administration
      • Join Our List of Healthcare Professionals
      • Practitioner Education
    • Events
      • Book Club
      • Virtual Support Groups
    • Partner Marketplace
    • Merch Shop
  • Blog
    • Education
    • Client Stories
  • About
    • Donate
    • Who We Are
    • In the News
    • Our Supporters
    • Financials
  • Contact Us
    • Call or Email
    • Request an Appointment
    • Volunteer

Raise the Realm Day 4: Melody- Rare Disease

  • March 6, 2019

Raise the Realm Day 4: Melody- Rare Disease

As a parent of a child, receiving a “life-limiting” diagnosis is devastating. After months of hundreds of infantile spasms per day, we knew we had to try something different, something doctors were not initially on board with, especially with Melody being only nine months old. The two front-line medications did not stop her spasms, so we took a leap of faith and followed our gut instincts, bought a bottle of Charlotte’s Web CBD extract and, with the help from the Realm of Caring we figured out her dose based on her weight. She was not one of the “miracle stories” where the seizures stopped after the first dose, but we were prepared to give CBD a real chance to work, so we agreed to try it for three full months. She continued to have seizures, but after three weeks of Charlottes Web, we saw noticeable improvements in her cognitive development. She started sitting up on her own and was babbling again, a few skills she had lost after the seizures started. After seven weeks on Charlotte’s Web, her infantile spasms stopped altogether and since that date, she has continued to improve in all areas, much to the surprise of her doctors. A little girl with Aicardi Syndrome who we were told would never crawl, walk, or talk is now dancing, taking long walks outside, running, and has learned about 40 words. We decided to wean Melody off of Sabril and her last dose was September 2016; so she is now only taking Charlotte’s Web and she is beating the odds, one milestone and one word at a time.

We are over the moon watching our Aircardi princess love her life. Melody gives kisses and hugs and smiles and sings, and we know in our hearts she would not be doing these things without Charlotte’s Web. Her story gives hope and has encouraged other families to try CBD oil and has helped change lives of other children struggling with seizures. We could not be more proud of our girl and her resilience and we look forward to her future, something doctors warned us may not be possible. Charlotte’s Web continues to be the best decision we ever made for our sweet Melly and we remain forever grateful to the Stanley Brothers and everyone at the Realm of Caring and CW hemp.

Donate to Support More Stories Like These!

Melody

Share this post:

Share on X (Twitter) Share on Facebook Share on Pinterest Share on LinkedIn Share on Email

Follow Us:

Give Back

Help keep our resources free.
Donate Now

More Posts

CBD digestion

Cannabis for Gut Health and Holiday Digestion

The holiday season brings connection, comfort, and, let’s be honest,

Cannabinoids for the Symptoms of Autism: A Review of the Science

By Bonni Goldstein, MD View the featured webinar here   

What’s New in Cannabis – October 2025

October 2025 has delivered three significant events: scientific validation of

New Study Explores Reishi and Lion’s Mane Mushrooms for Epilepsy Relief

Background   Three nonprofits: Realm of Caring, Unlimited Sciences, and

PrevPreviousClient Spotlight: Brooklyn Grace
NextHer Crohn’s disease and arthritis are in remissionNext

REGISTER WITH RoC TODAY!

Realm of Caring focuses on research, education, building community, and improving quality of life. We are an educational resource for consumers, physicians, scientists, governments and the media.
Register now
  • PO Box 15224, Colorado Springs, CO 80935
  • 719-347-5400
  • [email protected]

Newsletter Sign-Up

Sign up to receive insights, news, and updates from Realm of Caring.

Email(Required)

Copyright © 2025 / Realm of Caring Foundation, Inc

  • Privacy
  • Disclaimer

Open the following in new tabs if you:

If you are already a user: Client Login

If you are not, then register: Client Registration

Once Logged in, click below to refresh the page.