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#RaisetheRealm 4 Days Left to $70K


[youtube https://www.youtube.com/watch?v=TkbzZ87QcYI]


Zaki has a very rare form of epilepsy called Doose syndrome. On top of many, many seizures, he has autism and his development has been delayed. He had 6 different types of seizures resulting in hundreds of thousands of seizures in his short life. Zaki was receiving hospice palliative care prior to cannabinoid therapy after his family tried 17 different pharmaceuticals, all of which failed him.

Even when you could not see Zaki’s seizures, his brain was still seizing at least every 10 seconds. How is a young brain to develop under these conditions?

After many struggles, Zaki started cannabinoid therapy in 2012. He is one of the reasons the Realm of Caring was founded. It took a few months to find the correct dose and then his seizures completely remitted. Some would call that a miracle, that is if there weren’t strong science to support CBD for seizures. Zaki was seizure free for almost 4 years. He was also able to come off of all pharmaceuticals. He is currently 99% seizure free.

Today, Zaki is a very lovable, kind, funny, and such a sweet boy. He is learning and developing more and more every day. Another inspirational story of cannabinoid therapy playing an instrumental part in bringing a child from hospice to health.

Zaki is age 14. His older brother Zarek is 20

#RaisetheRealm #SiblingLove

ZAKI 1 1


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Events

Raise the Realm Day 1: Ayden- Cerebral Palsy

Our four-year-old son, Ayden, was born fourteen weeks premature suffering a grade four intraventricular hemorrhage. Along with this brain bleed, he suffered a myriad of issues, which compounded the severity of injury. Shortly after Ayden’s first birthday we started noticing abnormal eye, arm, and leg movements. Given the circumstance, we knew he would have developmental delay. However, we soon learned that these abnormal movements were in fact catastrophic seizures further regressing his development. It was at the age of 18 months that he was diagnosed with both spastic quadriplegic cerebral palsy and infantile spasms, an epileptic syndrome characterized by an EEG pattern termed hypsarrhythmia. This hypsarrhythmia is essentially a chaotic and disorganized pattern of brain activity that is, in Ayden’s case, an expression of brain injury.

Initially, it was uncommon for Ayden to go even an hour without seizure activity. After failing countless pharmaceuticals that only left him with long lasting side effects, we began exploring cannabinoid therapy. Thanks to the Realm of Caring, we found an amazing level of knowledge and support. As soon as we started CBD oil, we noticed a significant decrease in seizures. We also began getting eye contact and even his first belly laugh! It was on the EEG following CBD treatment that our neurologist found he no longer had the hypsarrhythmia.

Though this has improved, Ayden still must cope with the painful debility associated with his muscle spasticity. This exaggerated muscle tone effects all four of his extremities and significantly impairs his daily functioning. Unfortunately, treatment requires more than just CBD, and that is something we do not have access to in our state. If we fail to relieve his spasticity, we face the real possibility of Ayden needing invasive orthopedic and neurosurgery. Contractures, scoliosis and hip dislocation are the most common conditions requiring corrective surgery. Surgeries like selective dorsal rhizotomy, tendon lengthening or transfer, osteotomy and limb reconstruction are some of the most painful surgeries to endure. Imagine your body uncontrollably contorting and being “stuck” in painful positions and instead of being overly sedated from pharmaceuticals, getting relief from cannabis and actually being able to make developmental progress. We know cannabis can help with this as we have traveled to try this for him. Not only does it provide physical relief, but cognitive improvement as well. Ayden is non verbal. The month we tried cannabis, he said “Mom” for the first time. That same day while waiting on an elevator, he looked at a stranger, lifted his head off my shoulder, and said “Hi” to her. This is the relief we see when Ayden can try cannabis. We are fighting tirelessly to have access in our state so Ayden can have that 24/7.

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Ayden

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#RaisetheRealm 3 Days Left to $70K

[youtube https://www.youtube.com/watch?v=Uga1UTgso0w]

       

 
Addy was born with a significant brain malformation, causing seizures which are very difficult to control. When she was 5 months old, her seizures began and her epileptologist prescribed high doses of 3 different traditional antiepileptic medications.  During that time she was basically tranquilized, slept 22 out of 24 hours each day, suffered significant developmental regression, and stopped interacting with the world around her, including her loved ones.

Addy’s family carried her lifeless body around for months and were provided with palliative care counseling for families with a terminally ill child.

Addy’s family moved to Colorado from Maine on Mother’s Day 2014 to try safe and legal access to medical cannabis. Within five minutes of Addy’s first dose of CBD oil, she smiled.  Her parents knew without a doubt this treatment option would make a positive difference in her life. Over the next year, Addy was able to lower the dosage of pharmaceuticals and stop one medication altogether.

Today she laughs and smiles, hugs her family, eats food by mouth instead of a G-tube, and she feeds herself! She communicates with an augmentative device and now attends preschool.

Addy is 5 and her older brother Colin is 9  

#RaisetheRealm #SiblingLove

ADDY 1

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Blog

So Many Visitors, SO Little Time

Our client base is growing and it’s growing fast! To help maintain great customer service we are now requesting that those who wish to visit at our office first schedule an appointment. Thanks for your understanding and patience! The Realm of Caring Team

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Client Spotlight

Client Spotlight: May

She was diagnosed with Generalized Idiopathic Epilepsy at the young age of 4. When we first started Charlotte’s Web, she was having approximately 6 episodes a day of varying seizures. She was not responding to various pharmaceuticals with full control; they all affected her personality, as well as the seizures, turned her into a different person.

I am thrilled to say we are approaching a full year since a tonic or tonic-clonic seizure!! We just went for an extended EEG to see if her smaller ones that are harder to detect are still occurring. We were accepted into the Realm Cares Financial Aid program but we already know this is going to have a huge impact for us.

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Stories

#RaisetheRealm 48 HOURS LEFT to $70K

[youtube https://www.youtube.com/watch?v=bGGKGrKVGrA]

Jason is a retired Army Veteran who has been deployed overseas several times. He suffered a traumatic brain injury in a bombing and has since dealt with depression, anxiety, PTSD and severe pain.

VA doctors were quick to heavily sedate him with an army of pharmaceutical drugs including medications for pain, depression, and anxiety. Once these pills took effect, Jason started gaining a lot of weight, his anger increased, and his self-esteem drastically decreased. He then started getting angry at the man he had become. He felt trapped like he had no way out. He thought, “Why wasn’t I being supported in my recovery?”  

Jason called himself “a mess”.  He was forced to stay on the medications from the VA because if he didn’t refill them each month he was at risk of losing his VA benefits. On more than one occasion, suicidal thoughts plagued him. He had no interest in life. He didn’t see the point in living such a miserable existence.

Jason’s anger was out of control. He didn’t enjoy being around his child or his (ex) wife. He would tower over his toddler on purpose, instead of kneeling down to their eye level.  Jason yelled all of the time, his child was scared, and his wife at that time decided to walk away. He moved in with his brother-in-arms Noah at that point and completely isolated himself. He wouldn’t join Noah and his family for dinner, instead, he would eat alone upstairs in his room and sulk.

Jason turned to alcohol to deal with his emotions and combined with his pharmaceutical medications, it was a nasty cocktail.  This started his downward spiral all the way to rock bottom.

Jason has always known about cannabis but it was never an option for him while serving active duty. On top of that, he was frequently drug tested as active duty and as a Veteran because he was prescribed opiates.

Since using cannabis Jason can manage all of his symptoms and his mental health is stable. He was able to decrease his pharmaceutical medications and stop a lot of his medications altogether.

He points out that he is never “high”. He likes to medicate before heading to the gym for his morning workouts. Cannabis helps relieve his anxiety and decrease his pain so his workouts are more effective. He is more loveable, calm, and overall happy.  Jason now enjoys being with his children and is happily re-married.

#RaisetheRealm #SiblingLove

JASON 1

 

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Client Spotlight

Client Spotlight: Ciara

Miss Ciara has had seizure’s since birth, she has a CP diagnosis, a seizure disorder, microcepholoptomy and recently was re-diagnosed with LGS – Lennox-Gastaut Syndrome… we have faced challenges since the beginning and given no hope or encouragement of healing they just painted a glim picture… But I told them her life will be what we make of it & I am doing my best to give her the best life she can have with the challenges we face. When I heard about the Marijuana – CBD- Hemp Oils helping with seizures, I was excited and filled with hope, especially after reading testimony after testimony of it working for all these kids just like my Ciara… Since the first dose, the first day I have been seeing a huge reduction of seizures, like almost obsolete! Seen an increase in her keeping her eyes open, seeing her happier and laughing. Seeing her kick her legs with excitement. It is a true God given gift what God has given us in this plant. It’s time to debunk the myths, time to end the prohibition on Marijuana…. for my Ciara, and for all those like her & others facing/dealing with other situations in their lives. I am thankful for this CW Everyday Advanced, it is the miracle we have been waiting a lifetime for.

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Stories

Man With Cerebral Palsy On A Mission

“I am a 24-year-old male with Cerebral Palsy, and I believe certain properties of the cannabis plant help with spasticity, but I would like to do more research having to do with the brain, specifically the brains of people with CP. Unless we remove marijuana from the Schedule 1 Controlled Substance list, we cannot do this research effectively.”

You can help too, sign the petition today!

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Events

#RaisetheRealm 24 HOURS Left to Raise $70K

[youtube https://www.youtube.com/watch?v=AIvCoyHIYOA]

Ezra’s story is an incredible one, to say the least. This little boy has been through more than most adults will ever imagine in a lifetime. Ezra suffers from a variety of different conditions starting with seizures from a rare disorder called Lennox Gastaut Syndrome (LGS).  He also has dystonia, chronic pain, muscle spasms, chronically dislocated hips, osteopenia, bilateral amblyopia, scoliosis, possible metabolic disorder, gastroparesis, GERD, and multiple food allergies.

His seizure disorder began just a few days after birth and the subsequent conditions are the result of a variety of reactions over time. Ezra has undergone many surgeries including a feeding tube placement when he was only 2 years old.  During that time samples were taken from his liver, thigh muscle, and skin to test for a mitochondrial disorder.

Over the years, Ezra has been on more than 40 different prescription drugs ranging from seizure medications to heavy duty pain medications such as fentanyl patches, morphine, ketamine, muscle relaxers, and the list goes on.

For such a young, fragile body how could any of these pharmaceuticals be a healthy option?  His organs were failing from all of the harsh and toxic chemicals. His family knew it was time for a change.

Like many families in this Raise the Realm project, Ezra’s family moved to Colorado Springs in July 2013 from Boiling Springs, South Carolina to get safe and legal access to medical cannabis. Ezra’s mom says, “It was a no-brainer to try a natural healing route to allow his body to learn to function and thrive as God intended.”

Since 2013, Ezra has definitely been thriving from cannabis therapies!  He uses cannabis oil made with a combination of high THC and low CBD and this has given him a 90% reduction in seizures. Wait, there is more because Ezra’s list of benefits continues to grow each day. Cannabis also keeps his chronic pain manageable, is improving his bone density, healing his gut and minimizing his reflux, improving his vision, and reducing his muscle spasms by 98%.

This medicine is providing amazing mental clarity allowing Ezra to express himself with the use of an eye gaze communication device. He continues to learn several concepts which correlate to those of his peers. He has been able to develop a system of communication with his family members when a communication device is not available. Eye contact, smiling, and nonverbal communication are things that were not possible before cannabis therapy. When we asked Ezra’s mom, Marisa, does she have anything to add? “Cannabis is lifesaving medicine!” she exclaims.

Ezra uses a combination of THC and CBD oil, cannabis leaf juice, rosin, rescue vaping or nasal spray, and homemade topicals. It took a couple of years to find the perfect concoction, but Ezra is doing better than ever. He continues to grow and develop and his body is healing after the use of the pharmaceuticals. At one point he was in hospice care, and now he exudes radiant health!

Ezra is age 6, his older brother Noah age 9, Odin is 2 and baby girl Selah age 7 months.

RaisetheRealm #SiblingLove

EZRA 1

 

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Client Spotlight

Client Spotlight: Patricia

At the urging of my oldest daughter, I purchased Charlotte’s Web 1 oz, 200mg bottle of hemp oil. When I was 28 (1988), I came down with CFIDS/Fibromyalgia. The first 7 years I was bedridden. I slowly improved, but I’ve never enjoyed good health since then. I stopped driving about 5-6 years ago due to severe brain fog. Bodily pain varies; what afflicted me most has been frequent migraines, severe fatigue, a definite feeling of malaise, light and sound sensitivity (so bad I had to quit going to church and other functions); the list goes on and on. Due to some swelling, I couldn’t walk from the pain for over 2 years. On ‘good days’ I’d try to go for nightly walks but usually had to turn back after just walking past 3 or 4 houses. It wasn’t fun; living in the dark and trying to find fulfillment doing basically nothing. I started taking the hemp oil six days ago: half a dropper full twice daily. I cannot even begin to tell you the improvement I’ve seen in that short time!! I feel mentally alert again. I no longer have that deathly morbid fatigue. My mood is …dare I say it… almost happy! Things that I had to force myself to do I now do naturally and without thought. And best of all….I have taken 1 mile walks every day since taking it with absolutely no problem!!!!! Smiling, no pain, no fatigue, for the first time in many years!! No way could any placebo effect cause this. I have tried so many things with sometimes disastrous results, and to tell the truth, had resigned myself to a lifetime of misery…It is awesome feeling like my old self after over 28 years.

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