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#HopeMatters Meet Paula and Jordan

Episode 1 of 7

[youtube https://www.youtube.com/watch?v=XVLnq4-Dvqs]

Tune in tomorrow to hear the rest of Paula and Jordan’s story.

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In 2013 Paula and Jordan made a decision that would forever change their lives. Leaving their family and friends in Ohio and moving to Colorado was something they never imagined. All in hopes of a treatment to control Jordan’s seizures caused by a catastrophic form of epilepsy called Dravet Syndrome.

Her seizures started when she was 6 months old and by the time she was 18 Jordan had tried a dozen different pharmaceuticals and nothing controlled her seizures. On her worst day, she would have more than 70 grand mal seizures in a 12 hour period. Jordan’s mom, Paula, was desperate to find some relief for her struggling daughter. “She’s living, but she’s living in a zone,” says Paula. Jordan was placed on palliative (hospice) care and the doctors said there wasn’t anything else they could do.

Paula heard about Charlotte Figi’s story and her success with cannabis, specifically CBD products, for Dravet Syndrome. But Paula didn’t know anyone in Colorado and thought it was crazy to pack up their lives and leave her husband and their other daughter in Ohio.

That’s when Paula said she asked for divine assistance and their path was made clear. Within a couple of months, they moved to Colorado and got started with cannabinoid therapies right away. Since then, Jordan has been able to wean off two pharmaceutical medications, one highly addictive. Jordan has improved cognitive function and better quality of life.

Quality of life matters.  You can make a lasting impact for a family like Paula and Jordan’s by donating your time as a volunteer or by making a tax-deductible donation to the Realm of Caring.  With your support, the Realm of Caring can continue to offer programs and services to thousands of families around the world who are looking for guidance with cannabis therapies.

For just $1/month you can be a RoC Friend and support families like Paula and Jordan’s. Join us today.

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Raise the Realm Day 9: Mary- Pain

Hi! This is Mary, and Its been almost two years since I participated in Evolve the storytelling project presented by Realm of Caring Foundation, and I wanted to update everyone on how well I’m still doing almost two years later! For starters I’ll be celebrating my 59th birthday in a couple of months, and I’m holding steady! Better then steady actually! I’m sure most of my doctors thought all my canna meds (CW, THCA & THC) was going to be a placebo effect. Still they couldn’t deny the decrease in pain, increased mental clarity, and my 58 pound weight loss since I started taking my canna meds in May of 2014. The biggest benefit for me was getting off all my prescriptions except for 2 1/2…thyroid, hormone and blood pressure being the half. I did have a setback when my doctor agreed to ween me off my Zoloft after 23 years of use because I was having breakthrough anxiety. That Was A Big Mistake to do that right after Thanksgiving and before the December holidays and to date the hardest thing I ever put myself through. What helped me through that rough spot was upping my canna meds and changing to 200mgs SAMe, (Zoloft replacement) meditation, therapy, a wonderful husband, friends and the RoC community! Keep the faith, and when they (the doctors, the specialist, the government) tell you there is nothing they can do but pump you full of pharmaceuticals call Realm of Caring! The caring of their patients, clients, the quality of the products they recommend, and the fact that they will have your back every step of the way! I say Thank You! Thank You! Thank You! Here’s to a better quality-of-life!!!!!

Mary

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Client Spotlight

Client Spotlight: Taylor

Submitted by his mom, Stacey,

This young man has lived his entire life plagued by epilepsy since he was born and will continue to do so for the rest of his life. But this is not just any epilepsy, It’s UNCONTROLLED EPILEPSY, among other medical issues. Being born one month premature set the stage for so many of his issues, including epilepsy, Autism, bipolar disorder, depression, and anxiety, both generalized & social. He has a learning disability. He has spent more of his life in doctors offices & hospitals & asleep recovering from seizures, then he has normal activities. He is special needs due to all these issues combined. He will probably never be able to live on his own due to all this and his disabilities. This disease & medical problems, being born premature & just never having a normal life due to them has deprived him of the ability to learn and retain even basic life/ living skills. We are his advocates.

So with a lot of research & a recommendation from two of his doctors, we began using nonconventional medical treatments/therapy to treat Taylor’s epilepsy and other issues. It’s proven thus far to help, and better than what was previously being used which caused him more harm than good. Great to find an alternative therapy and medical treatments to work in his favor, but the expenses of his medical treatment are a downfall. We cannot afford it, and none of it is covered by his insurance. We struggle financially to make things work for him. He has been through so many medications (seizure meds), that he ran out of options. Meds had begun to start to show signs of making his insides “angry.” Liver tests come back abnormal in areas they shouldn’t and so he’s having to be weaned off meds and is undergoing this special treatment to address his medical problems to help control his epilepsy. The nonconventional methods have been of some help to him and more so then the medications, without damaging his internal organs.

NONE of this is covered by insurance, and so we are drowning and killing ourselves trying to afford this form of treatment, to keep him healthy and seizure free. It’s his only option at this point. We need help with these medical expenses and therapies! He’s a fighter and we continue this battle every day, without CBD oil Taylor probably wouldn’t be with us. He fights with all his might. Please like and follow his page on facebook https://www.facebook.com/taylorsfight4anormallife

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Stories

#GivingMatters Part 2 of Paula and Jordan’s Journey.

Episode 2 of 7

[youtube https://www.youtube.com/watch?v=n_Exo7qUbx4]

Tune in tomorrow to meet our next family, the Jergers, and hear their incredible story!

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We hope you feel inspired to make an impact after watching part two of Paula and Jordan’s story. Today, when Jordan has a seizure it is much less severe and overall her life has been positively affected by cannabinoid therapies. Paula is thrilled they made the move out West more than 5 years ago to try a plant-based, non-toxic option. “She’s never asked to go back home,” says Paula. They were one of the first families to relocate to Colorado before hundreds of families with medically fragile children migrated here. These families were known as “medical refugees” for leaving their home-states to try an option that wasn’t available to them at the time.

In the United States (at the end of 2018) we have 33 states plus Washington D.C. with medical cannabis laws, and 10 states which have legalized recreational cannabis, so hearing the term “medical refugee” is a little archaic, although it’s still happening as you’ll discover in episode three of this series tomorrow. It took families like Paula’s to completely uproot their lives and instigate major changes surrounding the medical cannabis stigma and legalities.

Without sacrifices like theirs, would more than half of our country have medical cannabis laws? These fearless families made a huge impact within their communities and beyond. Will you consider making an impact before the end of the year?

You’re probably asking, where does my donation go?

By donating to the Realm of Caring you are supporting education, research and grant programs. To date, donors have enabled Realm of Caring to grant more than $300,000 in financial assistance to families in need, and invest over $600,000 in first of its kind research with Universities like Johns Hopkins, Harvard, and the University of Pennsylvania studying the health outcomes of CBD and cannabis.

Becoming a RoC Friend for $1/month is the most impactful way to give. Become a Friend today.

One of greatest gifts you can give is your time! We would love if you’d consider volunteering for Realm of Caring! Read more about what volunteering looks like.

Tune in tomorrow to meet the Jerger family and learn why they fled the state of Indiana.

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Events

Raise the Realm Day 8: Luke- Autism

Our little boy who we call Baby Luke, is 4.5 years old, and the apple of our eye. He was born what we believed to be a happy handsome little boy and as parents do we loved him unconditionally.

After a few months we noticed that there were issues in Baby Luke’s development, so we brought him to the doctors. Approximately 2 years later, baby Luke was diagnosed with Profound Non-Verbal Autism, massive sight issues and a vestibular condition. We were heartbroken as we knew too well what this meant in Ireland and the hardships both Luke (and us as his parents) would have to face to get schooling, OT, speech, and language etc.

Shortly after Luke’s diagnosis, we noticed a massive shift in Luke’s behavior, not eating, not sleeping, hurting himself and others, we could see his sensory issues explode in front of us driven by the severe anxiety of his surroundings.

We, at this point, have been surviving on 3 hours of sleep a night, at our complete wits end- the continual crying, the no sleep, the violent outbursts, the self-harming- our little boy was not there anymore; he had changed, he was lost in his own mind, his own condition trapping him to this behaviour.

So, we reached out to doctors, the prescriptions kept coming but nothing worked! So at the last point, we tried Charlottes Web Advanced Solution, starting at 0.2ml twice a day and adjusting the dosage along the way. In the first night, Baby Luke slept 9.5 hours! He was 24 hours away from being admitted to a hospital by our GP for refusing to eat in over 5 weeks and what did our boy do? He started to eat ! Yogurt, apples, bananas, fries, pasta, we couldn’t believe it. We cried and cried, as parents angry at ourselves for not trying this sooner, but then tears of joy that our boy would not require a feeding tube.

The results were and still are so amazing that we had to share our story with everyone who would listen. ASD parents have to see with the own eyes to believe what it does.

We started an awareness campaign called Life Being Blue on Facebook. I would recommend any parents in Europe that are on the fence to look at the daily videos look at what it has done for our son and family! Our little boy had gone from skin and bones and riddled with social and neurological disorders, to a child that is trying to communicate trying, to learn and nearly singing! Seeing is believing and Baby Luke’s Videos are there for everyone to see!

There is nothing to loose and much to gain!

Please share our page! Education on this is key people who live with severe ASD need to realize that CW is a possible solution to regain a standard of life. And this is key it’s about potentially gaining a standard of life.

Daddy Luke, Mommy Donna and Baby Luke

Luke

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Client Spotlight

Client Spotlight: Jessie

I was a hospice nurse when a work accident suddenly ended my career and altered my life drastically. It left me disabled with a spinal injury, limited mobility, and constant excruciating pain.

It seems so silly now, but I was so scared to try cannabinoid therapy. Even though I was taking opiates and benzodiazepines around the clock to manage the pain and muscle spasms.

It’s silly because I had already tried EVERYTHING else, including a major surgery that left me in an even worse condition. But the stigma of medical marijuana frightened me so much, and a risky surgery was more socially acceptable. Deep down, I didn’t believe a plant could help me when morphine barely touched the pain.

Finally, my mom convinced me to try medical marijuana. “You’ve tried everything else,” she said, “you have to try this.” The day I started MMJ is the day I stopped taking benzos and opiates. I haven’t needed them since, and it’s been nearly two years.

The first time I used medical marijuana, the spasms just melted away and the pain lifted. I knew at that moment, this plant could give me a bit of my life back.

Now, cannabinoid therapy is not a magical cure. It hasn’t healed my spine or returned my full range of motion. But MMJ has enhanced my quality of life on a massive scale. Cannabinoids control my pain and spasms without the harsh side effects of opiates.

I’ll never have my hospice nursing career back, but I created MarijuanaMommy.com to help others buck the stereotype and try medical marijuana because this plant is changing lives around the globe. It’s time to stop fearing it.

-Jessie

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Client Spotlight: Taylor

Taylor started on the CBD oil in December 2015 with Neurologist approval. So the new journey began…

It started out just stopping every seizure without the use of the heavy duty Diazepam rectal gel. To, currently, preventing them all together. Going on 120 days seizure free on the Charlotte’s Web CBD therapy. There have been a few mild break thru seizures previous to this seizure free streak, but mild and very short lived compared to what they were before the CBD oil therapy…and with absolutely NO side effects! This is now mandatory to keep the seizures and other issues under control and at bay. Taylor has shown great improvement in seizure control with the oil. Moods are better, No Diazepam needed, and NO seizures currently. Taylor has been able to come off of every prescription pharmaceutical medication out of the 8 he was on except 1 of them, and once he is seizure free for 6 months he will be able to wean off that final pharmaceutical medication. So to this family, Charlotte’s Web, Cannabidiol therapy oil, has proven extremely effective and has went above and beyond “said claims”. It’s like a miracle! I cannot express the magnitude of the positive impact these oils have had on their lives and seizure control! CBD oil helping is great, and wonderful news and a miracle to see happening for their son. Thanks to this amazing “Side-effect free”, natural oil, our son is happy, healthy, off big-pharma medications and is seizure free! He has his life back and that is the biggest blessing. We have all we ever wanted for him, good health, happiness, and on the road to life without seizures. So far so good. Whether it decreases them 50%, 75% or 100% , it is all a positive change for him and proof the oil works. It is far better than the 0% he was getting on the pharma medications for all his issues. It is fantastic to see him smiling again and to be able to finally say, “I have Epilepsy… Epilepsy doesn’t have me!”

The future may not always be clear or look bright. Sometimes it’s like you are given a timer as to how long you can look in life, but no matter how the future looks, we have to look up to the sky, keep our heads held high and pray. Hold on to hope, because sometimes, that’s all you’ve got. Hope , faith, and love… that’s what get’s us through. TAYLOR IS OUR CHILD, A CHILD: A REAL PERSON, WITH REAL STRUGGLES. WHO DESERVES A CHANCE AT A NORMAL LIFE. CHARLOTTE’S WEB IS GIVING HIM THAT AND MORE!

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Raise the Realm Day 6: Leigh- Cancer

My name is Leigh. My first personal experience with cancer was in 1995 when my mother was diagnosed with stage 4 ovarian cancer and given 6 months to live. Her name was Charlotte and she was a visionary. She lived for 6 years instead of 6 months and when I was first diagnosed in 2012 with Stage 1 breast cancer I remembered her words…”I wish I had never done that chemo or the radiation.”

I chose to have bilateral mastectomies after determining I was BRCA positive. I declined the pharmaceutical drugs that were offered to me and went on my own path to healing. That path has included exercise, healthy eating and juicing, keeping stress low, being grateful…my recipe changes along with the seasons.
In April of 2016, I began taking Charlotte’s Web for swelling in my right hand from overwork, not knowing the cancer was back. In late June, with the swelling completely gone in my hand, I scheduled a surgery to remove scar/fat tissue from the site of the previous cancer and it ended up being malignant. I upped the Charlotte’s Web to therapeutic doses along with high-dose THC in August and completed 60 grams of The Stanley Brothers’ THC Concentrate in 60 days after moving to Colorado in November. I have just gotten a clear PET scan. I am so grateful that the laws are changing and the research is finally beginning on cannabis. I know had the researchers been allowed to explore the medicinal benefits of this “weed” there would be more wellness on the planet….and my mother could still be alive. I am certain that CBD/THC are main components to my wellness and I am so grateful for the access I have to these medicines.

Leigh

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Client Spotlight

Client Spotlight: Robin

At the age of 57 I have lived with intractable complex partial seizures for 44 years. Neurologists have had me try most of the anticonvulsants that are made and I still take three of them. When I became persistent to my epileptologist about trying CBD he finally gave me the name ‘Realm of Caring’ to contact!

RoC has been a joy to work with as well as CW and my family and I thank you. My last day of cluster seizures (5) was almost a year ago and I started taking CBD oil the next day. I have had no cluster seizures since! My doctor is happy with this outcome and we even cut down some of my other meds, but it’s a careful journey. I still have periodic seizures, 1-2 a month, but they are very mild in length, neurological effects and number compared to 5-7 a month in previous years past. Thank you RoC.
-M.R.S.

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Client Spotlight

Client Spotlight: Aline

Aline was diagnosed with hydrocephalus, a build up of fluid in the brain, when her mom was seven months pregnant. At one-month old, Aline had a Pudenz valve placed which got infected within two weeks. She was in the hospital for about seven months under antibiotics and she started having seizures by the third month that she was in the hospital due to the severity of the infection. Since starting cannabinoid therapy, Aline has changed in a significant way. She’s sleeping better, her appetite is just amazing, she’s more aware of her surroundings and her squint eye seems to get better everyday. Not to mention that her seizures have dropped to 0 in over 6 months!!! The most exciting is that pre-school is now a reality; she has started the past week and she’s enjoying it tons! We have also been able to go out/travel without being worried sick about her seizures. I would love to mention that my relatives are also doing better than ever, as it was hard for them to know that we were always alert and that we might have had to run to the hospital because Aline would seize. The impact is just so much! I’ve mentioned previously we can now see for a better way of living for us and Aline. The whole family is just overwhelmed of how Aline has progressed and how her seizures have dropped. They have been through a lot with with us, going to the hospital, staying with Aline at the hospital (as an emergency room visit we knew for sure that she’d stay in for at least 3 days). We are all just very happy with Aline’s progress. You can’t imagine how happy her cousins are, as she can now attend various events, she even went to a baseball game last week!! We (my whole family and I) would like to thank you from the bottom of our hearts for the opportunity you are giving Aline for a better chance at life. We cant express and thank you enough for how much you are doing for us.