Written by mom Tracie What does Realm of Caring mean to you? Realm of Caring has given me and my family so much hope. They have given us so much support, help, love, and kindness. For all this our family is very grateful, we are very blessed, and thank God every day this company and these wonderful people have come to help all of us parents, caregivers, and families and given much-needed hope!!!!! Tell us your story. My name is Tracie, and I am mother and caregiver to our son,...

Written by mom Lisa We have a 5-year-old daughter who was diagnosed with a rare form of epilepsy when she was 2 1/2-years-old. Her condition was intractable meaning resistant to treatment. We tried many medications. None of them helped. They only made her seizures worse and the side effects were unbearable - she regressed cognitively, was irritable, had mood swings and rage. We tried the ketogenic diet in which she was restricted to 10 grams of carbohydrates a day. She was having hundreds of seizures a day - all day...

Episode 6 of 7 [youtube https://www.youtube.com/watch?v=6XJLRA5rqjc] Donate Now! Five years ago Dara and her daughter Maddy moved to Colorado when Maddy was almost 9. “My life has changed...I don’t like seizures, but I’m just glad that I’m not the only one in this world that has seizures, and I have friends that have seizures,” says now 14-year-old Maddy. Dara talks extensively about how Maddy’s seizures affected her memory; something many of us never consider because we take our ability to create and store memories for granted. At one point, Maddy’s...

Episode 5 of 7 [youtube https://www.youtube.com/watch?v=vfusKuCMAPM] Donate Now! Maddy was born prematurely and after extensive testing, her doctors concluded that she suffered brain damage due to a stroke in utero. Her team of doctors didn’t know exactly what would happen and their predictions ranged from her not developing further or she could grow into a healthy girl and maybe have a limp from the stroke. Dara’s only option was to take everything one day at a time. At age 1 Maddy was diagnosed with mild cerebral palsy on the right...

Episode 4 of 7 [youtube https://www.youtube.com/watch?v=daNMBHtRJ3E] Donate Now! "Number one hope for us is for Jaelah to be seizure free. Just a single day seizure free is like a miracle. It's a celebration." Says Jaelah's parents. Since 2-year-old Jaelah has been using CBD oil, her seizures have reduced more than 90%. Instead of 100 seizures a day, her parents say they visibly see 5 or 6 now. Her quality of life has improved drastically. "Quality of life for our daughter is the most important thing." Jaelah's parents, Lelah and Jade,...

Episode 3 of 7 [youtube https://www.youtube.com/watch?v=g9ntLjdrYVk] Tune in tomorrow to hear more from the Jergers Donate Now! The Jerger’s story is unfathomable. Not only because their youngest daughter, Jaelah, was recently diagnosed with Doose syndrome (a rare form of catastrophic pediatric epilepsy), but because they were at risk of losing her to the state of Indiana. Charlotte’s Web CBD oil was shipped to their home in Indiana like thousands of other families across the country and it was helping to control Jaelah’s seizures. Although Lelah, Jaelah’s mother, said they would...

The Selmeski family moved to Colorado in November of 2013 from East Tennessee so their young daughter with intractable epilepsy, Maggie, could legally try cannabinoid therapy. Back in 2013, many families moved to Colorado in search of legal cannabis. [youtube https://www.youtube.com/watch?v=7TazlRaFDpc?rel=0] Donate Now! The Selmeski family moved to Colorado in November of 2013 from East Tennessee so their young daughter with intractable epilepsy, Maggie, could legally try cannabinoid therapy. Back in 2013, many families moved to Colorado in search of legal cannabis. You may have heard of Pot Pilgrims or...

Episode 2 of 7 [youtube https://www.youtube.com/watch?v=n_Exo7qUbx4] Tune in tomorrow to meet our next family, the Jergers, and hear their incredible story! Donate Now! We hope you feel inspired to make an impact after watching part two of Paula and Jordan's story. Today, when Jordan has a seizure it is much less severe and overall her life has been positively affected by cannabinoid therapies. Paula is thrilled they made the move out West more than 5 years ago to try a plant-based, non-toxic option. "She's never asked to go back home,"...

[youtube https://www.youtube.com/watch?v=AIvCoyHIYOA] Ezra’s story is an incredible one, to say the least. This little boy has been through more than most adults will ever imagine in a lifetime. Ezra suffers from a variety of different conditions starting with seizures from a rare disorder called Lennox Gastaut Syndrome (LGS).  He also has dystonia, chronic pain, muscle spasms, chronically dislocated hips, osteopenia, bilateral amblyopia, scoliosis, possible metabolic disorder, gastroparesis, GERD, and multiple food allergies. His seizure disorder began just a few days after birth and the subsequent conditions are the result of...

[youtube https://www.youtube.com/watch?v=Uga1UTgso0w]           Addy was born with a significant brain malformation, causing seizures which are very difficult to control. When she was 5 months old, her seizures began and her epileptologist prescribed high doses of 3 different traditional antiepileptic medications.  During that time she was basically tranquilized, slept 22 out of 24 hours each day, suffered significant developmental regression, and stopped interacting with the world around her, including her loved ones. Addy’s family carried her lifeless body around for months and were provided with palliative care...