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Man With Cerebral Palsy On A Mission

“I am a 24-year-old male with Cerebral Palsy, and I believe certain properties of the cannabis plant help with spasticity, but I would like to do more research having to do with the brain, specifically the brains of people with CP. Unless we remove marijuana from the Schedule 1 Controlled Substance list, we cannot do this research effectively.”

You can help too, sign the petition today!

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Client Spotlight

Client Spotlight: Ciara

Miss Ciara has had seizure’s since birth, she has a CP diagnosis, a seizure disorder, microcepholoptomy and recently was re-diagnosed with LGS – Lennox-Gastaut Syndrome… we have faced challenges since the beginning and given no hope or encouragement of healing they just painted a glim picture… But I told them her life will be what we make of it & I am doing my best to give her the best life she can have with the challenges we face. When I heard about the Marijuana – CBD- Hemp Oils helping with seizures, I was excited and filled with hope, especially after reading testimony after testimony of it working for all these kids just like my Ciara… Since the first dose, the first day I have been seeing a huge reduction of seizures, like almost obsolete! Seen an increase in her keeping her eyes open, seeing her happier and laughing. Seeing her kick her legs with excitement. It is a true God given gift what God has given us in this plant. It’s time to debunk the myths, time to end the prohibition on Marijuana…. for my Ciara, and for all those like her & others facing/dealing with other situations in their lives. I am thankful for this CW Everyday Advanced, it is the miracle we have been waiting a lifetime for.

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Breaking Ground with the Stanley Brothers

[youtube https://www.youtube.com/watch?v=3y1oF5QzGkg]

 

Listen to Breaking Ground with the Stanley Brothers debut episode with CNN’s Dr. Sanjay Gupta on Apple podcasts or wherever you listen. With the Stanley Brothers, Sanjay talks cannabis, the opioid crisis, why whole plant medicine matters, and a bold letter he wrote to Jeff Sessions and the Trump Administration. Listen here: bit.ly/BGwSB

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We Were Recently Featured on Dateline

https://www.nbcnews.com/widget/video-embed/1237046851647

Technical issue with the audio. Link to full video here: https://bit.ly/2J5BHfk

“I saw life….” Watch as Former NFL Player, Eugene Monroe, describes his visit to Realm of Caring headquarters in Colorado Springs in his recent interview with Dateline NBC and their feature story “Growing Hope”. 

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Story of Inspiration – Meet Brandi

What does Realm of Caring mean to you?

Brandi:  I love the support and transparency. It’s a real deal community. I once called a listed practitioner and received [great] advice. I give every month 🙂

Tell us your story.

My name is Brandi, I am 46 years old, I am happily married with 3 sons and 2 grandsons. I am a personal trainer and nutrition coach. My fibromyalgia was triggered 8 years ago and came in the sudden onset of extreme fatigue and food allergies. We quickly determined I could no longer eat gluten, and then eventually soy. I have been a clean eater for over 10 years and in excellent physical shape so this was surprising. I now know that all my life I have had pain, the pain was my normal. It steadily increased to the point that I could barely move in the evenings.

I am not comfortable with prescription medications and last year I turned my self-study research to not only anti-inflammatory eating such as Keto or low-carb, higher healthy fats, but also to CBD. I developed anxiety in 2017. This was confusing since it mostly hit me when I was exhausted and trying to sleep or when I was very happy, like when I am hiking or with family.

CW Hemp was the third oil I tried. It was so confusing to find a quality oil that had been lab tested for not only impurities and toxins but also to prove that it contained CBD! Since I have chronic pain, I went straight for the highest strength, Everyday Advanced. I take one full dropper morning and night and occasionally a 35 mg capsule on a hard day. It is like magic! My anxiety is a rare occurrence now and the pain went from a daily 8/10 to most days being around a 2! I have tons of energy and I just feel great! I only strength train 3x a week for 45 min, I do EFT (Emotional Freedom Techniques/Tapping)  when needed, take walks with my clients and make sure I have time for peace and quiet and I am learning the acoustic guitar.

CW Hemp has changed my life. I went without it for 2 doses on accident and paid the price. Thank you for this product, your diligence and your caring for your fellow humans. This little oil allows me to get up every day at 4 am and train my clients til 3 pm on most days and still play with my grandsons!

I spent my 46th bday in the canyon on a 4-day intense hike.
I am a wife, mom, grandma, and coach.
All because of my clean diet of high fat, low-carb, moderate protein,
no grains, and other inflammatory foods,
and my CWhemp…
There is life with fibromyalgia!! 
Go live it!

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Let’s Talk About Epidiolex

Today was a big day in the world of cannabis. The first ever plant-based pharmaceutical drug made from cannabis rich in cannabidiol (CBD), Epidiolex, was scheduled by the DEA. You’d think it would be scheduled as a II or III because “marijuana” is schedule I (no medical value with high potential for abuse/federally illegal). Not the case. Epidiolex was scheduled as level V the lowest possible schedule – least restrictive – which legitimizes the proven health benefits of CBD and its low potential for abuse. To give you a comparison, Epidiolex is in the same category as cough syrup with small amounts of codeine and yes, it requires a prescription. The FDA approved the drug in June for two rare and severe forms of epilepsy, Lennox Gastaut Syndrome (LGS) and Dravet Syndrome. It is possible that doctors will write prescriptions “off-label” for other epilepsy conditions that can benefit from CBD.

There is a lot of confusion surrounding this topic so we wanted to clarify a few things for you. As we learn more we will update this article.  First, this doesn’t change anything for those of you who are using whole plant botanical extracts made from industrial hemp. The molecule CBD did not get scheduled today, only the drug Epidiolex. This motion by the DEA does allow for future FDA approved cannabis-derived pharmaceuticals as long as the THC limit is less than 0.1%.  CBD did not get patented, you can’t patent a plant. CBD is not illegal if you are following your state laws, plus we have the added protection from the Farm Bill and Omnibus Bill from federal prosecution. Accessing CBD is a personal decision and you should make the best decisions to improve the quality of life for you or your loved one.

Currently, there are synthetic (man-made) forms of cannabis pharmaceuticals Cesamet and Marinol on the market which are scheduled as II and III and are prescribed to chemotherapy patients with vomiting and severe nausea. These drugs are THC based, not high in CBD. If you live in a medical or recreational cannabis state you can access THC products under state laws, although it is still federally illegal with “marijuana” as schedule I.

Having Epidiolex on the market is a move in the right direction because the US government clearly recognizes the medicinal benefits of cannabis. FDA approval also means insurance companies should cover the cost because it is expected to be pretty pricey. If they don’t (and you may need to fight for coverage)this may turn into an unaffordable option.

Fun Fact:
Did you know cannabis was available as a pharmaceutical drug in the US until 1947? Then reefer madness happened and the public was largely misinformed. We are thrilled cannabis is getting her positive reputation back!

Did you know:
We are conducting the largest observational cannabis study in the US in collaboration with Johns Hopkins University. In our epilepsy population, the average dose of CBD is 2mg/kg (the range is 7mg CBD-600mg per day). The starting dose of Epidiolex is 5mg/kg. Their studies titrated participants up to 20mg/kg or higher.  It is really important to know and discuss this huge variance with your doctor.

If you found this article interesting, please share it with your friends and comment below!

[youtube https://www.youtube.com/watch?v=IJNLGIr37Ls]

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#HopeMatters Meet Paula and Jordan

Episode 1 of 7

[youtube https://www.youtube.com/watch?v=XVLnq4-Dvqs]

Tune in tomorrow to hear the rest of Paula and Jordan’s story.

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In 2013 Paula and Jordan made a decision that would forever change their lives. Leaving their family and friends in Ohio and moving to Colorado was something they never imagined. All in hopes of a treatment to control Jordan’s seizures caused by a catastrophic form of epilepsy called Dravet Syndrome.

Her seizures started when she was 6 months old and by the time she was 18 Jordan had tried a dozen different pharmaceuticals and nothing controlled her seizures. On her worst day, she would have more than 70 grand mal seizures in a 12 hour period. Jordan’s mom, Paula, was desperate to find some relief for her struggling daughter. “She’s living, but she’s living in a zone,” says Paula. Jordan was placed on palliative (hospice) care and the doctors said there wasn’t anything else they could do.

Paula heard about Charlotte Figi’s story and her success with cannabis, specifically CBD products, for Dravet Syndrome. But Paula didn’t know anyone in Colorado and thought it was crazy to pack up their lives and leave her husband and their other daughter in Ohio.

That’s when Paula said she asked for divine assistance and their path was made clear. Within a couple of months, they moved to Colorado and got started with cannabinoid therapies right away. Since then, Jordan has been able to wean off two pharmaceutical medications, one highly addictive. Jordan has improved cognitive function and better quality of life.

Quality of life matters.  You can make a lasting impact for a family like Paula and Jordan’s by donating your time as a volunteer or by making a tax-deductible donation to the Realm of Caring.  With your support, the Realm of Caring can continue to offer programs and services to thousands of families around the world who are looking for guidance with cannabis therapies.

For just $1/month you can be a RoC Friend and support families like Paula and Jordan’s. Join us today.

Donate Now!
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#GivingMatters Part 2 of Paula and Jordan’s Journey.

Episode 2 of 7

[youtube https://www.youtube.com/watch?v=n_Exo7qUbx4]

Tune in tomorrow to meet our next family, the Jergers, and hear their incredible story!

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We hope you feel inspired to make an impact after watching part two of Paula and Jordan’s story. Today, when Jordan has a seizure it is much less severe and overall her life has been positively affected by cannabinoid therapies. Paula is thrilled they made the move out West more than 5 years ago to try a plant-based, non-toxic option. “She’s never asked to go back home,” says Paula. They were one of the first families to relocate to Colorado before hundreds of families with medically fragile children migrated here. These families were known as “medical refugees” for leaving their home-states to try an option that wasn’t available to them at the time.

In the United States (at the end of 2018) we have 33 states plus Washington D.C. with medical cannabis laws, and 10 states which have legalized recreational cannabis, so hearing the term “medical refugee” is a little archaic, although it’s still happening as you’ll discover in episode three of this series tomorrow. It took families like Paula’s to completely uproot their lives and instigate major changes surrounding the medical cannabis stigma and legalities.

Without sacrifices like theirs, would more than half of our country have medical cannabis laws? These fearless families made a huge impact within their communities and beyond. Will you consider making an impact before the end of the year?

You’re probably asking, where does my donation go?

By donating to the Realm of Caring you are supporting education, research and grant programs. To date, donors have enabled Realm of Caring to grant more than $300,000 in financial assistance to families in need, and invest over $600,000 in first of its kind research with Universities like Johns Hopkins, Harvard, and the University of Pennsylvania studying the health outcomes of CBD and cannabis.

Becoming a RoC Friend for $1/month is the most impactful way to give. Become a Friend today.

One of greatest gifts you can give is your time! We would love if you’d consider volunteering for Realm of Caring! Read more about what volunteering looks like.

Tune in tomorrow to meet the Jerger family and learn why they fled the state of Indiana.

Donate Now!
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Client Spotlight

Client Spotlight: Jessie

I was a hospice nurse when a work accident suddenly ended my career and altered my life drastically. It left me disabled with a spinal injury, limited mobility, and constant excruciating pain.

It seems so silly now, but I was so scared to try cannabinoid therapy. Even though I was taking opiates and benzodiazepines around the clock to manage the pain and muscle spasms.

It’s silly because I had already tried EVERYTHING else, including a major surgery that left me in an even worse condition. But the stigma of medical marijuana frightened me so much, and a risky surgery was more socially acceptable. Deep down, I didn’t believe a plant could help me when morphine barely touched the pain.

Finally, my mom convinced me to try medical marijuana. “You’ve tried everything else,” she said, “you have to try this.” The day I started MMJ is the day I stopped taking benzos and opiates. I haven’t needed them since, and it’s been nearly two years.

The first time I used medical marijuana, the spasms just melted away and the pain lifted. I knew at that moment, this plant could give me a bit of my life back.

Now, cannabinoid therapy is not a magical cure. It hasn’t healed my spine or returned my full range of motion. But MMJ has enhanced my quality of life on a massive scale. Cannabinoids control my pain and spasms without the harsh side effects of opiates.

I’ll never have my hospice nursing career back, but I created MarijuanaMommy.com to help others buck the stereotype and try medical marijuana because this plant is changing lives around the globe. It’s time to stop fearing it.

-Jessie

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Client Spotlight

Client Spotlight: Taylor

Submitted by his mom, Stacey,

This young man has lived his entire life plagued by epilepsy since he was born and will continue to do so for the rest of his life. But this is not just any epilepsy, It’s UNCONTROLLED EPILEPSY, among other medical issues. Being born one month premature set the stage for so many of his issues, including epilepsy, Autism, bipolar disorder, depression, and anxiety, both generalized & social. He has a learning disability. He has spent more of his life in doctors offices & hospitals & asleep recovering from seizures, then he has normal activities. He is special needs due to all these issues combined. He will probably never be able to live on his own due to all this and his disabilities. This disease & medical problems, being born premature & just never having a normal life due to them has deprived him of the ability to learn and retain even basic life/ living skills. We are his advocates.

So with a lot of research & a recommendation from two of his doctors, we began using nonconventional medical treatments/therapy to treat Taylor’s epilepsy and other issues. It’s proven thus far to help, and better than what was previously being used which caused him more harm than good. Great to find an alternative therapy and medical treatments to work in his favor, but the expenses of his medical treatment are a downfall. We cannot afford it, and none of it is covered by his insurance. We struggle financially to make things work for him. He has been through so many medications (seizure meds), that he ran out of options. Meds had begun to start to show signs of making his insides “angry.” Liver tests come back abnormal in areas they shouldn’t and so he’s having to be weaned off meds and is undergoing this special treatment to address his medical problems to help control his epilepsy. The nonconventional methods have been of some help to him and more so then the medications, without damaging his internal organs.

NONE of this is covered by insurance, and so we are drowning and killing ourselves trying to afford this form of treatment, to keep him healthy and seizure free. It’s his only option at this point. We need help with these medical expenses and therapies! He’s a fighter and we continue this battle every day, without CBD oil Taylor probably wouldn’t be with us. He fights with all his might. Please like and follow his page on facebook https://www.facebook.com/taylorsfight4anormallife