Her Crohn’s disease and arthritis are in remission

Provided by Michelle’s family

Michelle is our only child. She became sick at 15 months old following an encephalopathy that destroyed her health. Michelle is now 23. She’s been diagnosed with severe autism (non-verbal), intractable grand mal epilepsy, Crohn’s disease, spondyloarthritis, uveitis, legal blindness, osteoporosis, severe deformity bilateral (feet bones), stage III steatohepatitis (liver disease) and severe static encephalopathy.

When Michelle was 10 years old she had her first grand mal seizure. It was so strong that it caused her to drop straight down twisting her legs beneath her, causing a compound open fracture (bone busting right through her shin). She was in the hospital for 6 weeks following this seizure and surgery. She was put on anti-seizure medication during that time. This point was really the beginning of a worsening overall in Michelle’s health. She had trouble healing from the bone break. She continued to have severe Crohn’s, painful arthritis, painful foot deformities, insomnia, and increasing grand mal seizures. Of everything that she had going on, the seizures were the most terrifying to us. We took her to five different neurologists to try to get her help for the seizures. All they could offer was more anti-seizure medications and brain surgery. We were told that she was at a high risk to die from SUDEP.

A few years ago I began researching medical marijuana, with an emphasis on CBD. I saw the CNN specials with Dr. Gupta and felt this was something that may be able to help. Michelle’s health was not good and continued to decline. She was on several strong anti-inflammatory drugs including Humira and Remicade, as well as very high doses of anti-seizure medications. She was feeding tube dependent yet severely overweight (steroids beginning at 8 years). She had horrific pain just to walk. She was in a wheelchair when outside of the home. It took two people to help her walk because she had to hold on. She continued to have grand mal seizures, clustering while she was sleeping to as many as nine at a time. She was repeatedly hospitalized for abdominal wall abscesses at the feeding tube sight. Her body couldn’t fight the infections because her immune system had been suppressed for so long. She continued to have seizures. She didn’t feel good. She was having horrible self-injurious behaviors because of pain. Michelle was completely debilitated at this point. None of her specialists could offer anything more for her. I had only one hope and that was to try medical marijuana. I had already been researching it off and on for several years. But I wasn’t sure where to start. I saw a presentation online from a doctor in California who was treating children with CBD, Dr. Goldstein, and we made an appointment to see her.

From the beginning of taking CBD we could see a difference. The first thing we saw was Michelle began to smile. We titrated weekly for a few months to reach a therapeutic level. The seizures began to decrease with seizure-free periods. Two months after starting CBD, Michelle began to taste food by mouth. Previously, she was feeding tube dependent with only rice crackers and water by mouth. Now she was tasting cooked food, pot roast with vegetables. Within a few months, we had her GI’s permission to discontinue tube feedings and feed only by mouth! So now Michelle was eating meat, chicken and a variety of vegetables!

Because of the constant infections, we had to consider discontinuing Humira. We stopped Humira but Michelle continued to improve with the Crohn’s disease symptoms. Although she was eating by mouth, she no longer was having chronic diarrhea. She began having regular bowel movements and still does! By the end of the first year, she was no longer showing signs of active arthritis. She began to walk more, lose weight and become very alert. She continued to have good seizure control with only occasional breakthroughs. I was able to get her into adaptive exercise classes. She lost more weight and began to improve overall. Today, she is no longer taking any anti-inflammatory medication. She is slowly weaning off of her seizure medications. Her seizures are well controlled. She had her feeding tube removed after 13 years!! Her doctors say her Crohn’s disease and arthritis are in remission. She has imaging and lab results showing her liver to be improving. She is able to sit through speech and OT therapy because her autism symptoms are lessening and she is able to participate now. She has begun using an AAC iPad device. She is happy and laughs with us. Her quality of life has improved by 1000%, and she is healing. This treatment has been a real life changer for Michelle.


#GivingMatters Meet the Jergers

Episode 3 of 7


Tune in tomorrow to hear more from the Jergers

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The Jerger’s story is unfathomable. Not only because their youngest daughter, Jaelah, was recently diagnosed with Doose syndrome (a rare form of catastrophic pediatric epilepsy), but because they were at risk of losing her to the state of Indiana.

Charlotte’s Web CBD oil was shipped to their home in Indiana like thousands of other families across the country and it was helping to control Jaelah’s seizures.

Although Lelah, Jaelah’s mother, said they would not consider trying cannabinoid therapies, they are now very happy they did because her almost 100 seizures daily have been reduced to 10-20 seizures per day after receiving education services by Care Specialists at the Realm of Caring. Just when things started going well the worst happened. The family received a call from Child Protective Services (CPS). According to them, “We were medically neglecting our child by using CBD oil instead of a pharmaceutical, which is a false allegation,” says Jaelah’s father, Jade.

A nurse practitioner at Riley’s Hospital contacted CPS because “We were using Charlotte’s Web CBD oil even though Jaelah was seizure free [at the time], they [medical staff] didn’t agree with it,” says Lelah. The Jergers received a second opinion and that doctor wanted Jaelah to try a low-dose of Keppra in addition to the CBD oil, so they reluctantly agreed to try it to avoid CPS involvement but they continued to wrongly investigate.

It wasn’t long after she started Keppra that she began having unwanted side effects and her parents decided to wean her off. Unfortunately, this meant they weren’t compliant with CPS. Fearing that their daughter would be taken away, the Jergers decided to make the move to Colorado where the medical community is more accepting and educated on cannabinoid therapies.

They didn’t know anyone in Colorado. Where would they live? Where would they work? They have four other children who would have to leave their friends and schools. It didn’t matter – they were moving. Fortunately for them, they qualified for the Joy Fund which is a relocation grant awarded to families in need. The Jergers used the grant to make their transition much easier. Jaelah is currently having minimal seizures, but she remains 90% + controlled and they continue to search for the right combination of cannabinoids.

You’ll hear more about this in the next episode, but in the meantime please consider making a donation to the Joy Fund by being a RoC Friend.

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#OptionsMatter The Jerger’s grant moves them to Colorado

Episode 4 of 7


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“Number one hope for us is for Jaelah to be seizure free. Just a single day seizure free is like a miracle. It’s a celebration.” Says Jaelah’s parents.

Since 2-year-old Jaelah has been using CBD oil, her seizures have reduced more than 90%. Instead of 100 seizures a day, her parents say they visibly see 5 or 6 now. Her quality of life has improved drastically.

“Quality of life for our daughter is the most important thing.”

Jaelah’s parents, Lelah and Jade, say she is thriving more now than ever. She has occupational and speech therapy – when none of these were options for her in Indiana. When we met Jaelah in their home, no one would guess she is a little girl who has struggled with seizures. She runs around like any 2-year-old playing with her siblings and putting ornaments on the tree.

The Jerger’s found the Realm of Caring when they were searching for information about how to use CBD oils. “I just fell in love with the Realm of Caring. Everything about it,” Lelah confesses. They applied for the Joy Fund, a relocation grant, and were able to take the stress out of moving to Colorado this summer.

The Joy Fund has been a blessing to many families over the years and it continues to exist from donations from people like you. The easiest and most impactful way to give is $1 a month as a RoC Friend. Be the reason that other families can relocate to a state where they or their children have options.

If you are already a RoC Friend, share this message with your friends and family. This is a gift that keeps on giving.

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#QualityofLifeMatters Meet Dara and her daughter Maddy

Episode 5 of 7


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Maddy was born prematurely and after extensive testing, her doctors concluded that she suffered brain damage due to a stroke in utero. Her team of doctors didn’t know exactly what would happen and their predictions ranged from her not developing further or she could grow into a healthy girl and maybe have a limp from the stroke. Dara’s only option was to take everything one day at a time.

At age 1 Maddy was diagnosed with mild cerebral palsy on the right side of her body. She started working with different therapists to regain control and was doing really well. Although delayed, she hit every milestone and started reading at a very young age.

“We were warned by her neurologist that there was a possibility of her having seizures, but the doctor thought it would happen before she turned the age of 5,” says Dara. Maddy was almost 6 when she had her first seizure early one morning. Dara didn’t know what was happening because the only seizures she had ever witnessed were on TV and they looked more like a grand mal. Maddy’s seizures looked very different. She didn’t act like herself, wasn’t coherent, and made strange swallowing noises. Dara wasn’t knowledgeable about cerebral palsy (CP) at the time and thought maybe Maddy’s CP was getting worse because she walked slanted and her body would clench up.

It turns out the types of seizures Maddy has are partial complex and she can talk and walk through them and they mostly affect the right side of her body. After her first seizure, Dara knew their lives were going to completely change.

Tune in tomorrow for episode 6 of 7 and dive into the next chapter of Dara and Maddy’s journey.

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RoC’s Education Face Lift: 5 Reasons To Tune Into Our Education Series 

Are you interested in learning more about cannabis (hemp) and cannabinoid therapies?

Read on to see the many ways to engage with Realm of Caring and get your questions answered. 

We have put our heads together and brainstormed the latest and greatest approach to educating our clients. Join us on Tuesday, August 28th, at 1pm MST , for our beginning class called “Getting Started.” If you want the next steps and a deeper dive, feel free to join us on Tuesday, September 11th, at 1pm MST for our first 201 class, a detailed-oriented class specifically on Administration. 

Here are 5 reasons why you should watch our Education Series:

#1 ASK QUESTIONS LIVE   Did you know that as you watch, you can ask questions by typing them into the live chat? We will answer your individual questions and concerns as they arise during the class. Contribute to the discussion! Register here: Also you can speak with a Care Specialist: 719-347-5400

#2 EVIDENCE-BASED   Did you know that we have the largest Observational Research Registry (ORR) in the United States? Clients have an opportunity to participate in data collection and research. Our data drives our education, providing clients with practical applications for humans.

Learn more here:

#3 CHANGING INFORMATION   Did you know that new cannabis information emerges every day? Since we experience change on a daily basis it is important to stay informed and up-to-date on current information. Register to get the most up to date facts about cannabis and cannabinoid therapies:

#4 FREE TO LEARN   On August 28th, watch the free education class “Getting Started” to learn about the following topics:

-Realm of Caring Organization Overview,

-State & Federal Laws,

-CBD & THC, CBD from Hemp vs CBD from Marijuana,

-The Endocannabinoid System,

-Administration & Half-Life,

-The Entourage Effect,

-Quality Products,

-Side Effects,

-Potential Interactions,


-How to talk with your healthcare provider,

-Donate, Volunteer and Register.

5 QUALITY OF LIFE MATTERS  You have the ability to choose and make decisions that affect the quality of your life. Find out how cannabis and cannabinoid therapies work and use the tools and resources to help you navigate this journey. We are here for you every step of the way,

Register today:


#HopeMatters Maddy on her Journey to Health

Episode 6 of 7


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Five years ago Dara and her daughter Maddy moved to Colorado when Maddy was almost 9. “My life has changed…I don’t like seizures, but I’m just glad that I’m not the only one in this world that has seizures, and I have friends that have seizures,” says now 14-year-old Maddy.

Dara talks extensively about how Maddy’s seizures affected her memory; something many of us never consider because we take our ability to create and store memories for granted. At one point, Maddy’s memory was so poor that immediately after eating a sandwich she says she is hungry and has zero recollection of eating just a few minutes ago. She would spend time with her family and not remember one thing that she did for fun. This became a daily occurrence in addition to severe seizures.

For years, Maddy had intractable epilepsy which meant no medications would work. The doctors didn’t know this at the time and kept prescribing more medications. She tried more than six different pharmaceuticals with tons of side effects and also tried the ketogenic diet. On the medications she wasn’t herself anymore, she was angry, irritable, and frustrated at the tender age of 6 and 7 years old.

At one point she was under observation for 4 days in Johns Hopkins University and her neurologist concluded that 80% of her sleep included seizure activity and overall Maddy was having many more seizures than they previously thought.

More heavy-duty and addictive medications that were “slowly killing her” were prescribed. After more time had passed the doctors said, “The only thing we can do is remove half of her brain.”

Really? This was Maddy’s only hope? After Dara watched a video of other kids with seizures having success with CBD oil she wondered, “could this actually be an option for Maddy?” It sure sounds easier than removing half of her brain.

In 2013 they made the biggest decision of their lives and moved to Colorado to try CBD oil because moving across the country was the only legal way to gain access. Five years later, Maddy still hasn’t had brain surgery or any surgery for that matter and is thriving as a teenager.

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#Community Matters Bringing Everyone Together

Episode 7 of 7


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This episode concludes our end of year giving campaign and we hope you are feeling inspired by every one of these families!

The end of the year brings reflection and goals for the next year.  Here at Realm of Caring Foundation (RoC), we help people find answers to tough questions like administration and dosing guidelines for cannabinoid therapies. We don’t give answers “because we heard it somewhere” we give data-driven answers from the research we’ve been collecting for years. This Observational Research Registry (ORR), in collaboration with institutions like Johns Hopkins University, takes hundreds of thousands of dollars to implement each year. Those dollars come from donors like you who give $12 a year as a RoC Friend. Also, all of our programs and services are completely free and the only way to sustain free programs is through additional RoC Friends in 2019.

Another thing we LOVE to do is give money away to families in need. This can be in the form of a relocation grant (Joy Fund) like the Jerger’s received this summer which relieved the pressure of moving from Indiana to Colorado so Jaelah could access products and services that weren’t available in her state.  We also give away grants to families to offset the cost of their therapies that aren’t covered by insurance through the Realm Cares program. Anyone in need can apply, and the average amount is $100 directly deposited into the recipient’s account over a one year period.  To date, we have given back over $300,000.00 in grant programs because of RoC Friends!

This is all super AHHHmazing, EXCEPT, we don’t have enough money to give every person that applies for the grant and this breaks our hearts.?  We hope in 2019 we can raise enough funding to close the gap and no longer have to turn desperate families away. To give a grant to every person who applies, we need around $2,600,000.00. You read that right. 2.6 million dollars.  Every dollar counts.

We know this end of year giving campaign is running a little late and our biggest ask of the year is the week before Christmas. But, we aren’t asking you to donate $10,000 or even $500. We aren’t asking you to donate $20 (which is the average secret Santa gift exchange cost.)

We are asking for $12 and that covers your donation for the year! It doesn’t seem like a lot, but it is the MOST IMPACTFUL way to give.

Side note: According to a new Workonomix survey by Accounting Principals, 50% of the American workforce spends approximately $1000 a year oncoffeeor a weekly coffee habit of more than $20. WOW!

It’s not $12 a month – it’s $1 a MONTH. Of course, if you have more to give, please do – your donation is completely tax-deductible because we are a 501c(3) nonprofit. Do you have a rich Uncle Ron who needs to move some money around at the end of the year for tax purposes?Send him our direction.

But for YOU – the average person who probably struggles to pay the mortgage every month, we are asking for $1.

To give some more perspective, we have more than 90,000 followers on our social media accounts. If each one would donate $1 we would have $90,000 to expand our research program for 1 year, or help 18 more families relocate to a state with medical cannabis laws so they don’t live in fear of their child being taken away.

This is our ask: If you aren’t already, become a RoC Friend for $12/year. Tell your friends, family, co-workers, neighbors, whoever is in your community about this wonderful video series. Share these stories and inspire your community to also give $12/year.  See where we’re going with this? Be the change. Pay it forward. Give a tremendous gift we call the gift of time.  Many of the families we serve around the world are running out of time, out of options, out of hope.

Help us to help them. You are the hero of this story. Thank you.

Sign up todayORDONATE any amount

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We are seeing our daughter come back to life!

Written by mom Lisa

We have a 5-year-old daughter who was diagnosed with a rare form of epilepsy when she was 2 1/2-years-old. Her condition was intractable meaning resistant to treatment. We tried many medications. None of them helped. They only made her seizures worse and the side effects were unbearable – she regressed cognitively, was irritable, had mood swings and rage. We tried the ketogenic diet in which she was restricted to 10 grams of carbohydrates a day. She was having hundreds of seizures a day – all day long. Please imagine a small child suffering through so many seizures and nothing you did helped.

The financial, mental, physical, emotional, social impacts of a diagnosis like this are more than one can bear. After two years we were left with two options – another pharmaceutical that came with known side effects or medical marijuana specifically Charlotte’s Web (low THC). Since our daughter failed multiple pharmaceuticals the chance of another working was less than 5%. Charlotte’s Web had only beneficial side effects in the short term but unknown side effects in the long term. What it came down to is we needed to save her life. The seizures and medications were taking her away from us. And it was only a matter of time.

Charlotte’s Web worked. Within five months she went COMPLETELY seizure free. We are now weaning her off of the harsh pharmaceuticals and are seeing our daughter come back to life! It has changed our lives so much that she is starting Kindergarten in the fall – something we didn’t think would be possible two years ago! I don’t know a single parent who wouldn’t search under every rock to try to save their child. And every parent should have that right regardless of their zip code. The desperation of patients wanting the chance to try a medication that has been beneficial to others when pharmaceuticals haven’t is understandable. They are suffering. Marijuana is a schedule 1 substance, but it doesn’t warrant that classification. No one has died from the overdose of marijuana, but people die every day from the overdose of pharmaceuticals. From the research that has been done, we also understand that CBD is a natural neuro-protectant and protecting our daughter from brain damage. The opposite of what her pharmaceuticals were doing. I urge anyone to read the research that has been done – it does exist. Education and awareness on this topic are crucial and mind changing.

Note: Lisa wrote to us in 2015 when Charlotte’s Web CBD oil was manufactured as medical marijuana (cannabis) prior to it being grown as hemp. In 2015 families were still moving to medical marijuana states to obtain Charlotte’s Web. Thankfully the laws have since changed and CW is being shipped to most states.


5 Reasons to Join RoC for Administration and Dosing Education

Are you interested in learning more about how to administer and dose with cannabis for you, a patient, or a loved one? Join us on Tuesday, September 11th, at 1pm MST, for our continuing education class called “Administration & Dosing Education.”

Register here

Plan ahead and register for our next session on 9/25: Cannabinoid Therapy and Your Pet.

Here are 5 reasons why you should watch this deep dive into Administration & Dosing:

#1 ASK QUESTIONS LIVE: Did you know that as you watch, you can ask questions by typing them into the live chat? We will answer your individual questions and concerns as they arise during the class. Contribute to the discussion! Register here: Also you can speak with a Care Specialist: 719-347-5400, Option 1.

#2 EVIDENCE-BASED:  Did you know that we have the largest Observational Research Registry (ORR) in the United States? Clients have an opportunity to participate in data collection and research. Our data drives our education, especially our administration and dosing guidelines, providing clients with practical applications for humans. Learn more here:

#3 CHANGING INFORMATION: Did you know that new cannabis information, especially about administration and dosing, emerges every day? Since we experience change on a daily basis it is important to stay informed and up-to-date on current information. Register to get the most up to date facts about cannabis and cannabinoid therapies:

#4 FREE TO LEARN: On September 11th, watch the free education class “Administration & Dosing” and take a deeper dive into the following topics: 

-Realm of Caring Organization Overview

-Importance of Quality Products

-Quality Products

-Administration Methods

-Administration and Dosing

-Guidelines and Calculators

-CBD & THC Ratios


-Slow & Steady, Special Considerations

-Donate, Volunteer, and Register

#5 QUALITY OF LIFE MATTERS: You have the ability to choose and make decisions that affect the quality of your life. Learn more about effective administration and dosing and use our tools and resources to help you navigate this journey. We are here for you every step of the way, Register today: 
Realm of Caring Foundation specifically invokes the First Amendment Rights of Freedom of Speech and of the Press without prejudice. These statements have not been evaluated by the Food and Drug Administration. The products discussed are not intended to diagnose, cure, prevent or treat any disease. RoC always recommends when and wherever possible that licensed local healthcare professionals be consulted.   The Realm of Caring Foundation is an independent nonprofit with its own governing board. We do not produce or sell cannabinoid products, nor do we receive funds from the sale of other company’s products.  



I am no longer depressed or suicidal

Written by Laura 

I joined the Navy in 1994. Seven years before retirement I fell down a flight of stairs and severely injured my spine and neck. I didn’t receive proper treatment until the pain was so bad I was removed from sea commands permanently and placed on medical board for removal from service. After physical therapy, extensive cortisone shots throughout my body, psychological pain therapy, TMS therapy, and 18+ pain medicines, muscle relaxers and SSRIs, I was honorably retired.

I attempted suicide in 2011 and again in 2013 – the second time was right after my retirement. For six months, I cut myself off from the world and began to detox my body. I suffered from extreme pain and extreme physiological effects from the prescription pills but I was convinced that if I didn’t, I would die; even if it was my own hand. I had a dear friend recommend cannabis, a plant that I have never seen, let alone tried as an adolescent or young adult. At 39 years old, I learned how to make edibles and it has changed my life.

Today, I am no longer depressed or suicidal. I have regained the ability to perform basic daily functions to include showering and dressing myself. I am a cancer survivor, a fibromyalgia survivor, a military sexual trauma survivor and I KNOW that cannabis saved my life. Because I took the chance and used cannabis, I am not a statistic. I am not one of the veterans who took their own life. I am now a mom, a wife, a retiree, a college student (Master’s) and an educator of everyone I meet that cannabis is a wonderful plant.