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Raise the Realm Day 3: Fernanda- Autoimmune

En Español

(Read in English Here)

Mi nombre es Fernanda y vivo en Argentina, tengo 6 hijos y 3 nietos. Padezco desde hace 15 años de fibromialgia y desde hace 7 años neuralgia del trigémino. Llamado también dolor suicida. Ambas enfermedades no son mortales ni terminales pero tan dolorosas que pueden afectar terriblemente la vida.

La neuralgia del trigémino comenzó con una pequeña electricidad en la cara en forma esporádica y luego de ser diagnosticada y medicada, avanzó año a año, como así la cantidad de medicaciones o tratamientos realizados, alopáticos, homeopáticos, acupuntura etc, sin ningún resultado. El año pasado las crisis eran tan fuertes que el mas mínimo pestañeo, respirar, comer o cualquier rose, me provocaban descargas eléctricas insoportables. Estaba terminando una carrera después de 4 años que realicé con mucho sacrificio y veía que con el dolor lacerante que avanzaba no iba a poder terminarla.

Entre otras consecuencias de esta enfermedad, puedo mencionar el aislamiento, la tristeza, el terror por realizar tareas simples como cepillarme los dientes, o tan esenciales como dar un beso a mis seres queridos. Mi familia me sostenía y acompañaba con mucho amor, y sufrían impotentes por no poder hacer nada y ver mi sufrimiento. En octubre del 2016 saque turno con mi medica decidida a operarme, a pesar de la resistencia de ella debido a los serios riesgos de la operación y sus posibles secuelas. Una semana antes del turno con mi neuróloga escuche en la radio sobre el tratamiento con el aceite medicinal de cannabis y me contacte con el padre de una niña con epilepsia refractaria y que gracias al tratamiento había disminuido las 54 convulsiones diarias a ninguna.

Así que en octubre comencé con el aval de los prestigiosos médicos que me estaban tratando el tratamiento con Charlotte`s Web, y a los 15 días el dolor había disminuido al 60 % comencé a poder sonreír, hablar sin miedo, comer normalmente, dormir. Hace ya 6 meses que estoy con este nuevo tratamiento la neuralgia me disminuyo totalmente y los médicos están muy sorprendidos y contentos de los avances y la eficacia. Pude terminar mi carrera, reincorporarme a la vida social, besar a mis seres queridos y sonreír. Mis seres queridos también sonríen.

Tengo la esperanza de que el aceite medicinal puede ser la respuesta a tantas enfermedades incurables o llevar paz y alivio a las personas que las padecen y sus seres queridos.

¡Done para apoyar más historias como éstas!

In English

My name is Fernanda, I live in Argentina and I have 6 kids and 3 grandchildren. I was diagnosed 15 years ago with Fibromyalgia and 7 years ago with Trigeminal Neuralgia also called “Suicide Pain”. Both diseases are not mortal nor terminal, but they are so painful, they affect your life terribly.

My Trigeminal Neuralgia started with a little tingle electricity like sensation sporadically and then it turned into a diagnosis. After being medicated, every year, it got worse as the number of medications increased. I did allopathic, homeopathic and acupuncture treatments with no results. Last year, my crisis were so strong that I could not blink, breath, eat or touch anything without having an electric charge that caused me unbelievable pain. I was about to finish my degree, but the pain did not permit me to finish.

Another consequence of this terrible disease is that it made me lonely, sad and I was terrified to brush my teeth or to kiss my loved ones. My family was supporting me, but they were suffering because they could not help me. In October 2016, I went to schedule a surgery with my Doctor who was against it due to the risk and side effects of the surgery. A week before my appointment with my doctor, I heard about CBD on the radio and I contacted the father of a child whose daughter was using the oil and went from having 54 seizures a day to none.

So, I started Charlotte’s Web with the help of my doctors and 15 days after taking Charlotte’s Web Hemp Extract, my pain had reduced 60%! I started smiling, talking without fear of pain, eating and sleeping. Today, 6 months later after using Charlotte’s Web, my neuralgia is completely out. The Doctors are very surprised about the efficacy of the oil. I could finish my degree, I went back to having a social life, kiss my loved ones and smile. My family is smiling as well.

I hope that this oil could be the answer to so many incurable diseases and that it will bring peace and alleviate all those people who suffer and their families.

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Fernanda

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Raise the Realm Day 7: Kendell- PTSD

I was a Loadmaster on a MC-130P Combat Shadow during the Tsunami Relief Effort in 2004/2005, seeing mass devastation, and unworldly damage. My world was changed just a few months later when I sustained a dislocated and fractured right leg, and Traumatic Brain Injury. I went through the VA gambit, twice tasting the working end of loaded firearm before I finally decided to quit all medications until I found a better alternative. Sleeping medications, anti-depressants, anti-this and anti-that; I knew I couldn’t continue that pace for long. After speaking with family, friends, and fellow veterans, I decided to try cannabis for the very first time on my 28th birthday with some of the most loving people I have in my life. The benefits I see not only help with my PTSD, but also positively benefit my physical health, physical abilities and day-to-day cognitive function.

Since my introduction in 2012, I’ve competed in 4 Warrior Games, and traveled with MSI Mining to install gold mining equipment around the world, and served as the Director of West Coast Operations for the Road Warrior Foundation- providing Adventure Therapy to our military veterans. No other medication in my life has helped me more than Cannabis and CBD. I hope to continue to show the benefits of this organic option as time goes on.

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Kendell

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Raise the Realm Day 1: Ayden- Cerebral Palsy

Our four-year-old son, Ayden, was born fourteen weeks premature suffering a grade four intraventricular hemorrhage. Along with this brain bleed, he suffered a myriad of issues, which compounded the severity of injury. Shortly after Ayden’s first birthday we started noticing abnormal eye, arm, and leg movements. Given the circumstance, we knew he would have developmental delay. However, we soon learned that these abnormal movements were in fact catastrophic seizures further regressing his development. It was at the age of 18 months that he was diagnosed with both spastic quadriplegic cerebral palsy and infantile spasms, an epileptic syndrome characterized by an EEG pattern termed hypsarrhythmia. This hypsarrhythmia is essentially a chaotic and disorganized pattern of brain activity that is, in Ayden’s case, an expression of brain injury.

Initially, it was uncommon for Ayden to go even an hour without seizure activity. After failing countless pharmaceuticals that only left him with long lasting side effects, we began exploring cannabinoid therapy. Thanks to the Realm of Caring, we found an amazing level of knowledge and support. As soon as we started CBD oil, we noticed a significant decrease in seizures. We also began getting eye contact and even his first belly laugh! It was on the EEG following CBD treatment that our neurologist found he no longer had the hypsarrhythmia.

Though this has improved, Ayden still must cope with the painful debility associated with his muscle spasticity. This exaggerated muscle tone effects all four of his extremities and significantly impairs his daily functioning. Unfortunately, treatment requires more than just CBD, and that is something we do not have access to in our state. If we fail to relieve his spasticity, we face the real possibility of Ayden needing invasive orthopedic and neurosurgery. Contractures, scoliosis and hip dislocation are the most common conditions requiring corrective surgery. Surgeries like selective dorsal rhizotomy, tendon lengthening or transfer, osteotomy and limb reconstruction are some of the most painful surgeries to endure. Imagine your body uncontrollably contorting and being “stuck” in painful positions and instead of being overly sedated from pharmaceuticals, getting relief from cannabis and actually being able to make developmental progress. We know cannabis can help with this as we have traveled to try this for him. Not only does it provide physical relief, but cognitive improvement as well. Ayden is non verbal. The month we tried cannabis, he said “Mom” for the first time. That same day while waiting on an elevator, he looked at a stranger, lifted his head off my shoulder, and said “Hi” to her. This is the relief we see when Ayden can try cannabis. We are fighting tirelessly to have access in our state so Ayden can have that 24/7.

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Ayden

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#RaisetheRealm 7 Days Left To $70K

The Selmeski family moved to Colorado in November of 2013 from East Tennessee so their young daughter with intractable epilepsy, Maggie, could legally try cannabinoid therapy. Back in 2013, many families moved to Colorado in search of legal cannabis.

[youtube https://www.youtube.com/watch?v=7TazlRaFDpc?rel=0]
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The Selmeski family moved to Colorado in November of 2013 from East Tennessee so their young daughter with intractable epilepsy, Maggie, could legally try cannabinoid therapy. Back in 2013, many families moved to Colorado in search of legal cannabis. You may have heard of Pot Pilgrims or Medical Refugees? Hundreds of families relocated in search of a miracle. Back then, it was required to have Colorado residency and a state medical cannabis card in order to obtain any cannabis products, including CBD. This was no small task.

When the Selmeskis moved to Colorado, Maggie was having up to 500 seizures a day. She had tried 6 different anticonvulsant pharmaceutical medications with no relief. Maggie became limp and lifeless, completely sedated on traditional “legal” pharmaceuticals.

Today, Maggie is enjoying 90% seizure reduction without pharmaceuticals. She smiles, laughs, and makes eye contact. She now attends school and finds creative ways to communicate with her family. All things that were not possible before cannabinoid therapy.

Maggie is now age 5, and her little brothers are Maddox who is 3 and Myles is 1.
#siblinglove #raisetherealm

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#RaisetheRealm 6 Days Left to $70K

[youtube https://www.youtube.com/watch?v=Bt3-C5YrfkU]

Looking at Chloe Levine, you wouldn’t know anything was “wrong” with her.  She laughs, smiles, and plays with her older sister, Shayla, doing anything a normal pre-teen would do.  Chloe had suffered a stroke in utero, probably early in pregnancy, and this resulted in hemiplegic cerebral palsy.  For the first 2 years of her life, she was not able to use the right side of her body until she had a stem cell transfusion with her own cord blood.

Chloe also has seizures, and she uses cannabinoid therapies to help keep them under control. She has tried both Lamictal and Keppra, which her mom says almost killed her.  Chloe would sit in the corner and scream for hours on end.

They decided to try cannabis oil because traditional pharmaceuticals were wasting her precious time and using something more natural seemed appealing.  Chloe’s family had heard many incredible stories of how THCA (the acid form of THC) oil could help children like her. Chloe’s neurologist calls her a miracle patient. She went from a sleep-deprived walking zombie, because her seizures kept her up all night, to a B student who once again has the will to tackle the world.

Chloe is now 11 and Shayla is 14. #raisetherealm #siblinglove

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#RaisetheRealm 5 Days Left to $70K

[youtube https://www.youtube.com/watch?v=4WqnfySaVCg]


The Brown family are natives of Colorado and Tyler has suffered from debilitating seizures since the age of 7 from a rare form of intractable epilepsy know as Lennox Gastaut Syndrome, and he also has cerebral palsy. Tyler has been through more than most of us. He had a VNS (vagus nerve stimulator) implanted age at 9, emergency Corpus Callosotomy (for those of you who don’t know what that means the surgeon cuts the corpus callosum, which is the large fiber bundle that connects the two sides of the brain) to stop status seizures at age 10.  Tyler also had a G-tube placed at age 10 because eating/chewing would trigger seizures and aspiration.

Tyler’s family tried 12 different pharmaceutical medications to control his seizures. Every single one failed. After the Corpus Callosotomy, two medically-induced comas, and unresponsiveness to rescue medications, there were no other options. This is when Tyler’s mom learned about medical cannabis.

She says it was their “only hope”.  Since using cannabis, Tyler reduced the number of pharmaceutical medications, and he is much healthier overall. No more frequent pneumonia and other illnesses landing him in the hospital. Until recently, the cannabis therapies have kept Tyler’s seizures at baseline.

Now that Tyler is 16, he is dealing with puberty, which means an increase in hormones. This has caused an increase in seizures that not even cannabis can control. Tyler’s parents have tried CBD alone, THC alone, and a combination of both. THC was very useful for Tyler’s withdrawal symptoms when weaning his pharmaceuticals.

Tyler’s mom, Rita, would like to add “a huge thanks to Realm of Caring, the Stanley Brothers, Heather and Paige for all the support and knowledge while going through this process. We couldn’t have done it without them!”

#RaisetheRealm #SiblingLove


TYLER2
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#RaisetheRealm 4 Days Left to $70K


[youtube https://www.youtube.com/watch?v=TkbzZ87QcYI]


Zaki has a very rare form of epilepsy called Doose syndrome. On top of many, many seizures, he has autism and his development has been delayed. He had 6 different types of seizures resulting in hundreds of thousands of seizures in his short life. Zaki was receiving hospice palliative care prior to cannabinoid therapy after his family tried 17 different pharmaceuticals, all of which failed him.

Even when you could not see Zaki’s seizures, his brain was still seizing at least every 10 seconds. How is a young brain to develop under these conditions?

After many struggles, Zaki started cannabinoid therapy in 2012. He is one of the reasons the Realm of Caring was founded. It took a few months to find the correct dose and then his seizures completely remitted. Some would call that a miracle, that is if there weren’t strong science to support CBD for seizures. Zaki was seizure free for almost 4 years. He was also able to come off of all pharmaceuticals. He is currently 99% seizure free.

Today, Zaki is a very lovable, kind, funny, and such a sweet boy. He is learning and developing more and more every day. Another inspirational story of cannabinoid therapy playing an instrumental part in bringing a child from hospice to health.

Zaki is age 14. His older brother Zarek is 20

#RaisetheRealm #SiblingLove

ZAKI 1 1


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