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Client Spotlight: Stacey

I started having episodes, as they were called back then (now known as seizures), back when I was in elementary school. I’m now 40 years old and still have epilepsy. It’s a constant fight and stalker in my life, but CBD oil has given me some hope. It works far better than any of my seizure medications ever have.

At my age I have completely depleted all my options, so I am reliant on CBD oil to keep the seizures at bay and give me hope for the rest of my future, so I can be around and be functional to care for my family and be here for all the family moments and moments with grandchildren. I wouldn’t go a single day without my CBD oil. It truly does help. No side effects, that’s good too!

-Stacey

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Client Spotlight

Client Spotlight: Taylor

Submitted by his mom, Stacey,

This young man has lived his entire life plagued by epilepsy since he was born and will continue to do so for the rest of his life. But this is not just any epilepsy, It’s UNCONTROLLED EPILEPSY, among other medical issues. Being born one month premature set the stage for so many of his issues, including epilepsy, Autism, bipolar disorder, depression, and anxiety, both generalized & social. He has a learning disability. He has spent more of his life in doctors offices & hospitals & asleep recovering from seizures, then he has normal activities. He is special needs due to all these issues combined. He will probably never be able to live on his own due to all this and his disabilities. This disease & medical problems, being born premature & just never having a normal life due to them has deprived him of the ability to learn and retain even basic life/ living skills. We are his advocates.

So with a lot of research & a recommendation from two of his doctors, we began using nonconventional medical treatments/therapy to treat Taylor’s epilepsy and other issues. It’s proven thus far to help, and better than what was previously being used which caused him more harm than good. Great to find an alternative therapy and medical treatments to work in his favor, but the expenses of his medical treatment are a downfall. We cannot afford it, and none of it is covered by his insurance. We struggle financially to make things work for him. He has been through so many medications (seizure meds), that he ran out of options. Meds had begun to start to show signs of making his insides “angry.” Liver tests come back abnormal in areas they shouldn’t and so he’s having to be weaned off meds and is undergoing this special treatment to address his medical problems to help control his epilepsy. The nonconventional methods have been of some help to him and more so then the medications, without damaging his internal organs.

NONE of this is covered by insurance, and so we are drowning and killing ourselves trying to afford this form of treatment, to keep him healthy and seizure free. It’s his only option at this point. We need help with these medical expenses and therapies! He’s a fighter and we continue this battle every day, without CBD oil Taylor probably wouldn’t be with us. He fights with all his might. Please like and follow his page on facebook https://www.facebook.com/taylorsfight4anormallife

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Client Spotlight

Client Spotlight: Jessie

I was a hospice nurse when a work accident suddenly ended my career and altered my life drastically. It left me disabled with a spinal injury, limited mobility, and constant excruciating pain.

It seems so silly now, but I was so scared to try cannabinoid therapy. Even though I was taking opiates and benzodiazepines around the clock to manage the pain and muscle spasms.

It’s silly because I had already tried EVERYTHING else, including a major surgery that left me in an even worse condition. But the stigma of medical marijuana frightened me so much, and a risky surgery was more socially acceptable. Deep down, I didn’t believe a plant could help me when morphine barely touched the pain.

Finally, my mom convinced me to try medical marijuana. “You’ve tried everything else,” she said, “you have to try this.” The day I started MMJ is the day I stopped taking benzos and opiates. I haven’t needed them since, and it’s been nearly two years.

The first time I used medical marijuana, the spasms just melted away and the pain lifted. I knew at that moment, this plant could give me a bit of my life back.

Now, cannabinoid therapy is not a magical cure. It hasn’t healed my spine or returned my full range of motion. But MMJ has enhanced my quality of life on a massive scale. Cannabinoids control my pain and spasms without the harsh side effects of opiates.

I’ll never have my hospice nursing career back, but I created MarijuanaMommy.com to help others buck the stereotype and try medical marijuana because this plant is changing lives around the globe. It’s time to stop fearing it.

-Jessie

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Client Spotlight

Client Spotlight: Robin

At the age of 57 I have lived with intractable complex partial seizures for 44 years. Neurologists have had me try most of the anticonvulsants that are made and I still take three of them. When I became persistent to my epileptologist about trying CBD he finally gave me the name ‘Realm of Caring’ to contact!

RoC has been a joy to work with as well as CW and my family and I thank you. My last day of cluster seizures (5) was almost a year ago and I started taking CBD oil the next day. I have had no cluster seizures since! My doctor is happy with this outcome and we even cut down some of my other meds, but it’s a careful journey. I still have periodic seizures, 1-2 a month, but they are very mild in length, neurological effects and number compared to 5-7 a month in previous years past. Thank you RoC.
-M.R.S.

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Client Spotlight

Client Spotlight: Helen

I have been having muscle spasms severely since I was about 15 years old. I’m now 45 so that is a long time. Most days it feels like all my muscles are going to rip off my body at any moment. I ruptured a disc in my thoracic spine in my mid 30’s. T7, T8. I was told this is not common, but from all my research it is more common than doctors say. My ruptured disc is causing spinal cord compression. I can NOT have surgery because I have some kind of bleeding disorder. No doctor will touch it. To make matters worse I do not have health insurance.

I have been suffering a very long time. It is bad when you wake up and all you think about is the pain. People are talking to you and you are in so much pain you do not even know what is being said.

Three days! it has only been 3 days! and I feel so much better. It was about 3am this morning, when I just kind of felt as if someone was putting a soft cloth over the screaming pain. I’m excited. I may get to enjoy some of my days. I know it has only been three days, but I have never felt this kind of relief. It’s a numbing sensation I guess is the best way to describe how It feels. Best money I have spent in eight years. Thank you, Thank you.

-Helen

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#RaisetheRealm 7 Days Left To $70K

The Selmeski family moved to Colorado in November of 2013 from East Tennessee so their young daughter with intractable epilepsy, Maggie, could legally try cannabinoid therapy. Back in 2013, many families moved to Colorado in search of legal cannabis.

[youtube https://www.youtube.com/watch?v=7TazlRaFDpc?rel=0]
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The Selmeski family moved to Colorado in November of 2013 from East Tennessee so their young daughter with intractable epilepsy, Maggie, could legally try cannabinoid therapy. Back in 2013, many families moved to Colorado in search of legal cannabis. You may have heard of Pot Pilgrims or Medical Refugees? Hundreds of families relocated in search of a miracle. Back then, it was required to have Colorado residency and a state medical cannabis card in order to obtain any cannabis products, including CBD. This was no small task.

When the Selmeskis moved to Colorado, Maggie was having up to 500 seizures a day. She had tried 6 different anticonvulsant pharmaceutical medications with no relief. Maggie became limp and lifeless, completely sedated on traditional “legal” pharmaceuticals.

Today, Maggie is enjoying 90% seizure reduction without pharmaceuticals. She smiles, laughs, and makes eye contact. She now attends school and finds creative ways to communicate with her family. All things that were not possible before cannabinoid therapy.

Maggie is now age 5, and her little brothers are Maddox who is 3 and Myles is 1.
#siblinglove #raisetherealm

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#RaisetheRealm 6 Days Left to $70K

[youtube https://www.youtube.com/watch?v=Bt3-C5YrfkU]

Looking at Chloe Levine, you wouldn’t know anything was “wrong” with her.  She laughs, smiles, and plays with her older sister, Shayla, doing anything a normal pre-teen would do.  Chloe had suffered a stroke in utero, probably early in pregnancy, and this resulted in hemiplegic cerebral palsy.  For the first 2 years of her life, she was not able to use the right side of her body until she had a stem cell transfusion with her own cord blood.

Chloe also has seizures, and she uses cannabinoid therapies to help keep them under control. She has tried both Lamictal and Keppra, which her mom says almost killed her.  Chloe would sit in the corner and scream for hours on end.

They decided to try cannabis oil because traditional pharmaceuticals were wasting her precious time and using something more natural seemed appealing.  Chloe’s family had heard many incredible stories of how THCA (the acid form of THC) oil could help children like her. Chloe’s neurologist calls her a miracle patient. She went from a sleep-deprived walking zombie, because her seizures kept her up all night, to a B student who once again has the will to tackle the world.

Chloe is now 11 and Shayla is 14. #raisetherealm #siblinglove

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#RaisetheRealm 5 Days Left to $70K

[youtube https://www.youtube.com/watch?v=4WqnfySaVCg]


The Brown family are natives of Colorado and Tyler has suffered from debilitating seizures since the age of 7 from a rare form of intractable epilepsy know as Lennox Gastaut Syndrome, and he also has cerebral palsy. Tyler has been through more than most of us. He had a VNS (vagus nerve stimulator) implanted age at 9, emergency Corpus Callosotomy (for those of you who don’t know what that means the surgeon cuts the corpus callosum, which is the large fiber bundle that connects the two sides of the brain) to stop status seizures at age 10.  Tyler also had a G-tube placed at age 10 because eating/chewing would trigger seizures and aspiration.

Tyler’s family tried 12 different pharmaceutical medications to control his seizures. Every single one failed. After the Corpus Callosotomy, two medically-induced comas, and unresponsiveness to rescue medications, there were no other options. This is when Tyler’s mom learned about medical cannabis.

She says it was their “only hope”.  Since using cannabis, Tyler reduced the number of pharmaceutical medications, and he is much healthier overall. No more frequent pneumonia and other illnesses landing him in the hospital. Until recently, the cannabis therapies have kept Tyler’s seizures at baseline.

Now that Tyler is 16, he is dealing with puberty, which means an increase in hormones. This has caused an increase in seizures that not even cannabis can control. Tyler’s parents have tried CBD alone, THC alone, and a combination of both. THC was very useful for Tyler’s withdrawal symptoms when weaning his pharmaceuticals.

Tyler’s mom, Rita, would like to add “a huge thanks to Realm of Caring, the Stanley Brothers, Heather and Paige for all the support and knowledge while going through this process. We couldn’t have done it without them!”

#RaisetheRealm #SiblingLove


TYLER2
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#RaisetheRealm 4 Days Left to $70K


[youtube https://www.youtube.com/watch?v=TkbzZ87QcYI]


Zaki has a very rare form of epilepsy called Doose syndrome. On top of many, many seizures, he has autism and his development has been delayed. He had 6 different types of seizures resulting in hundreds of thousands of seizures in his short life. Zaki was receiving hospice palliative care prior to cannabinoid therapy after his family tried 17 different pharmaceuticals, all of which failed him.

Even when you could not see Zaki’s seizures, his brain was still seizing at least every 10 seconds. How is a young brain to develop under these conditions?

After many struggles, Zaki started cannabinoid therapy in 2012. He is one of the reasons the Realm of Caring was founded. It took a few months to find the correct dose and then his seizures completely remitted. Some would call that a miracle, that is if there weren’t strong science to support CBD for seizures. Zaki was seizure free for almost 4 years. He was also able to come off of all pharmaceuticals. He is currently 99% seizure free.

Today, Zaki is a very lovable, kind, funny, and such a sweet boy. He is learning and developing more and more every day. Another inspirational story of cannabinoid therapy playing an instrumental part in bringing a child from hospice to health.

Zaki is age 14. His older brother Zarek is 20

#RaisetheRealm #SiblingLove

ZAKI 1 1


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#RaisetheRealm 3 Days Left to $70K

[youtube https://www.youtube.com/watch?v=Uga1UTgso0w]

       

 
Addy was born with a significant brain malformation, causing seizures which are very difficult to control. When she was 5 months old, her seizures began and her epileptologist prescribed high doses of 3 different traditional antiepileptic medications.  During that time she was basically tranquilized, slept 22 out of 24 hours each day, suffered significant developmental regression, and stopped interacting with the world around her, including her loved ones.

Addy’s family carried her lifeless body around for months and were provided with palliative care counseling for families with a terminally ill child.

Addy’s family moved to Colorado from Maine on Mother’s Day 2014 to try safe and legal access to medical cannabis. Within five minutes of Addy’s first dose of CBD oil, she smiled.  Her parents knew without a doubt this treatment option would make a positive difference in her life. Over the next year, Addy was able to lower the dosage of pharmaceuticals and stop one medication altogether.

Today she laughs and smiles, hugs her family, eats food by mouth instead of a G-tube, and she feeds herself! She communicates with an augmentative device and now attends preschool.

Addy is 5 and her older brother Colin is 9  

#RaisetheRealm #SiblingLove

ADDY 1